Has anyone developed Reynaud's disease from this lyme trek?
Over the past several months, a few of the ends of my fingers will turn white and go numb and tingly.
Has anyone experienced this? If so, does it go away with treatment, etc.?
I have been ill for 3.5 years and in treatment for 3 years...this is a newly developed symptom for me to add to my ever-growing list.
Four years ago I was running triathlons...Ugh...
Posted by tickssuck (Member # 15388) on :
Yes. I got sick in 2006. Reynaud's started then, never had it before that time. I still get it and I'm still sick. Don't mean to be a downer, just the truth. Still searching for wellness, though my hopes are diminishing. Posted by Lymetoo (Member # 743) on :
I've had Lyme for about 54 yrs... Raynaud's for at least 16 yrs... Successfully treated Lyme 9 yrs ago.
Still have Raynaud's.
Supposedly, Verapamil helps. I take that but never noticed the Raynaud's getting any better. I have to take the V for my heart.
I have had some relief from lavender and peppermint oil. It helps circulation.
Posted by triathletelymie (Member # 26456) on :
tickssuck - Unfortuately my hopes are diminishing as well...ugh....
Lymetoo...wonderful!
I hate Hate HATE this disease!
Posted by Rumigirl (Member # 15091) on :
Oh, triathletelymie, please don't give up. I've been there a lot myself, but I am getting better now.
I've had Raynaud's since I was a kid. Still have it. It was only diagnosed in adulthood. From the blasted Lyme, of course. There's a thread on it from just the other day with a number of people chiming in.
Have you thought about IVIG? That may help you, along with everything else. Talk to your LLMD about it. You would have to be evaluated by a specific neurologist for it---or immunologist. But I bet you'd qualify for the neurological diagnosis.
Posted by joysie (Member # 11063) on :
My daughter was diagnosed with "atypical" Raynauds (her hands/fingertips turned greenish/ white and tingled). It went away towards the end of her Lyme treatment.
Posted by feelfit (Member # 12770) on :
Tri- I developed Reynaud's too. Tips of fingers and toes. I mostly notice it affecting me in the mornings. After a hot shower, the color comes back.
I have also had instances of this happening in the refrigerated section of the grocery. TBI's affect the small blood vessels.
Are you taking anything to thin the blood? Lumbrokinase? Serrapeptase? Nattokinase? This may help. My cardiologist has a treatment that grows new small blood vessels: http://www.heartfixer.com/IndexEECP.htm
Small vessels are affected by infection, unfortunately. But doesn't mean that there aren't ways around it.
So hard to live with this illness when we were formerly top notch athletes- and can no longer do what our bodies are accustomed to. Best!
Posted by ArtnSoul (Member # 4561) on :
I have had lyme since age 3 most likely (47 years)...and I have had Raynaud's most of my life.
My feet, hands and nose are almost always cold. Sometimes some of my toes turn pure white. The numbness is fun too - NOT!
Hang in there!
Posted by Keebler (Member # 12673) on :
- Raynaud's hit me just about the time "mono" did in college (in frigid Wisconsin, of course). Looking back, the "mono" likely included lyme that would take decades to then be diagnosed after ruining my entire adulthood.
It's really not all that uncommon with lyme. Just do some cross-searches with "borellia" and see many past threads here at lymenet about it.
There are things that can help, though. A LL ND might be have access to that knowledge. Stinging Nettle helps me with Raynaud's. -
Posted by VV (Member # 38828) on :
I am not formally diagnosed with Raynaud's, but I have had cold hands and feet since my early 20's which has worsened.
I would be fine in the summer, but as soon as the temperature drops below a certain threshold (about 70�) my hands get frigid.
Posted by Dove7 (Member # 39546) on :
For me, it's a case of which came first....I'm unsure. Raynaud's causes such pain at times. I bought some fingertip-less compression gloves that help me cope; I got them on eBay for about $17.
![[Frown]](frown.gif)