Since first contracting lyme & co's I've had a rash that comes and goes in 24 hour cycles. It's an urticarial rash, like hives. (it will come and go without leaving any traces on the skin)
It is hot pink, raised, and very mottled or streaked in appearance, but not itchy. It doesn't look like the bartonella rash.
It appears in the evening, swells and gets progressively larger over many hours, and then is almost gone by the time I get up in the morning. It is always worst on my upper thighs and rear end.
My LLMD and I are hoping to find another person who has either heard of or had a rash such as mine. This rash caused me to be misdiagnosed for 12 years with an autoimmune disorder. A year ago I was dx with lyme & babs.
Anyone?
Posted by lostlyme (Member # 38561) on :
I had that type of rash it was bartonella,all that you describe is what i had here are some lyme rash pictures from google
[ 03-28-2013, 12:05 PM: Message edited by: lostlyme ]
Posted by TF (Member # 14183) on :
Well, when I had lyme disease and was treating it, I had lots of problems with hives. Before lyme, I never got hives.
Lyme can make you get hives to many, many things. My hives got worse at certain times of the day and were non-existent at certain times, just as you describe.
After 5 months of hives, I finally had my gyn give me a different prescription for hormone replacement, and that got rid of the hives. My skin doctor had suspected that this medication was the cause of my hives from the beginning.
This was a med I had taken for years, but it caused the hive problem when I treated lyme and slightly increased the dose.
There have been many posts on LymeNet over the years about how lyme causes folks to get hives to many, many things. I hope this is what is going on with you. But, it isn't any fun. I lived on Benadryl for those 5 months, and I could only wear the softest clothing.
Usually, for me, hives were the worst on the areas of the body you have mentioned.
So, all in all, it sounds a lot like the hives I suffered with while treating lyme.
With lyme, our bodies are overloaded as it is, so we get allergic type reactions to things very easily. Often, it takes the form of hives.
Posted by FamilyFive (Member # 37206) on :
Thanks TF, that's really interesting. I never really associated it with something else that could be triggered by the lyme.
The hives rash is the first symptom I got when I was first infected, and then when it all came back last year.
Posted by janice victorov (Member # 22937) on :
I would say Bart. I only have a touch of Bart. And every so often, a raised rash appears.
Have you been treated for that?
If you live in the dc area, most have all three infections.
Posted by Holly Beth (Member # 39193) on :
familyfive, I sent you a pm. Sounds just like Bart to me.
Posted by Lymetoo (Member # 743) on :
lostlyme.. those look like bullseyes to me.
Posted by WPinVA (Member # 33581) on :
What meds are you on? I just figured out the source of a mystery rash - it was an allergic reaction to Bactrim.
Pre-Lyme I had taken Bactrim at least twice with no problems. After Lyme dx, had been on Bactrim for months with no problems before I developed this reaction.
Bactrim is known for rashes, but people can have reactions to many other meds as well.
I also wanted to post a caution about assuming everything is "just Lyme." I ignored the rash for a good 2-3 weeks, thinking it was just one more strange Lyme-related thing that my body was doing. Nope, it was the Bactrim and my dermotologist said it was good I stopped when I did.
Posted by beths (Member # 18864) on :
I too developed a rash to bactrim after I had been on it almost a year!
Posted by FamilyFive (Member # 37206) on :
My rash was my first symptom long before I was diagnosed or treated. I went to a host of dr's... dermatologists, immunologists, and rheumatologists, and all allergies were ruled out.
The rash always starts along with my other symptoms; joint pain, swelling, fatigue. And flares very badly when I herx. It was gone for the 10 yrs my lyme was dormant and came back when my other symptoms did.
I've often thought the lyme and co's could have triggered some kind of autoimmune response. I was misdiagnosed with Adult Onset Still's Disease prior to lyme.
Posted by glm1111 (Member # 16556) on :
I have had similar rashes come out especially when I treated for parasites. Hives are on the symptom list for parasites/worms. Google parsite symptoms.
Filarial worms have been found in over 40% of the ticks dissected by Dr. Eva Sapi. Parasites/worms are often overlooked even by the best LLMDs.
This is what came out of me after I tx aggressively for parasites. www.lymephotos.com I would not ignore this avenue.
Check out the current PARASITE WARRIORS SUPPORT THREAD. This has been the missing link for myself and many others with chronic Lyme.