After four hellish years of having a mysterious illness, I was finally dx w/lyme. It's such a relief to put a name to all the suffering. To the doctors (80% incompetent) who suggested I see a therapist, I take antidepressants, I exercise ever day for one hour, take caffeine pills, and I could go on.
For me, that experience was worst than the actual illness. I went from being a healthy and active person, I was a runner, to almost bedbound in a few months. I felt as though I was in a coma. Like I had been sedated. My brain function was about 25%. It has been the MOST bizarre experience I have ever had.
Most of my symptoms are neuro with the exception of my sore throat. I'm sorry to ramble but I know most of you can relate. Does anyone else have neuro symptoms and especially the brain sedation feeling?? Thank you for listening Lee
[ 04-03-2013, 06:22 PM: Message edited by: Lymetoo ]
Posted by Lymetoo (Member # 743) on :
Hi, Lee!! So glad you found us here! I do hope you are getting proper treatment in TN. LLMDs are hard to find there.
I took the liberty of changing your topic line so more people will open your thread! I also put some "space" in the text of what you wrote so more are able to read it.
Most here are unable to read large blocks of print.
I'll move this to Medical so others can help you with your question.
Welcome!! Posted by Leeintn (Member # 25999) on :
Lymetoo, sorry for the confusion. I think I found how to reply:)
Posted by Lymetoo (Member # 743) on :
I was just going to bring you the link in General Support! Posted by LAXlover (Member # 25518) on :
Welcome Lee,
I'm sorry you suffered for years before finally getting your diagnosis. You will find here that most of us have been through similar ordeals, so we understand how you feel.
Lyme is epidemic but you would never know that if you simply relied on the media or most doctors!
I hope you are able to get to a LLMD as soon as possible and start a REAL treatment for your Lyme and possible co-infections.
After 3 years of treating for Lyme and not completely well, I am going being treated for Babesia. My daughter also.
Unfortunately testing is sub-par!
I am glad you found Lyme.net. The people here are full of knowledge so just post your questions.
I truly don't know how I would have made it through these last couple years without this group. They are great!
Don't forget you can use the "search" option at the top and learn very much that way too.
Take care, -LAXlover 75% of family with Lyme & co.
Posted by Jessiep (Member # 35399) on :
I know how you feel!! Now on to treatment. Find a doc that's tests and treats for all cos. my first llmd only treated lyme for 6mo and I got sicker during that time because of babesia. Keep us posted!
Posted by Robin123 (Member # 9197) on :
Yep - I felt the same way when I finally came in with a diagnosis - I didn't even know I had anything and stumbled into a dx.
Yes, the Lyme bacteria infect the brain right away, so everyone has neuro symptoms to a lesser or greater degree.
Re co-infections, like babesia, bartonella and ehrlichia, I suggest you google for their symptoms and see whether you think you match any of them. If you do, you can test for them too, although many doctors will treat clinically, by history and symptoms, since folks don't always test positive.
The main thing now is to get to a Lyme doctor who can start to help treat you. You can make a post in Seeking a Doctor for referrals.
Posted by Holly Beth (Member # 39193) on :
Hi and welcome!
I had the same neuro symptoms with forgetfulness,diff.concentrating, coma-like feeling, etc... I also had symptoms for over 4 yrs and just got diagnosed last Oct.
It's frustrating but at least we are on the right track now!
Posted by iluvrain (Member # 40055) on :
Lee in TN...was wondering if you could let me know where in TN you are or PM me? I am in TN also and just tested positive. Im curious who you will have treat and who diagnosed? The infectious doc doc tells me it is " rare" here. What symptoms caused you to be bedridden?
I will likely be seeing an llmd next week.
Thanks...always good to hear from TN folks!
Posted by kidsgotlyme (Member # 23691) on :
We live in Tn and I believe that is endemic in places here. We travel to Ct. For treatment Posted by Catgirl (Member # 31149) on :
We travel out of state too (not much in our state). A good lyme doc is worth it.
Posted by hopingandpraying (Member # 9256) on :
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