My sister has extreme intolerance to treating her various infections, (lyme, co-infections, heavy metals, mold, fungal, etc.) She has to take a very very tiny dose vs. a regular prescribed dose that an average patient can tolerate but results in extreme fatigue and exhaustion. Now she is trying rectal ozone insuffulation for treatment. What could cause this severe sensitivity? Numerous LLMDs have tried to figure it out but no answers.
Posted by seibertneurolyme (Member # 6416) on :
Lots of possibilities. The most obvious one would probably be a methylation cycle defect.
If it is just intolerable fatigue that is the main symptom then I would probably say just continue treatment and hope that improves once the infectious load is knocked down.
Hubby had a similar problem for many years, but the symptom that mad it hard for him to tolerate full dose meds was seizure-like spells and lots of movement disorder symptoms.
What eventually worked so he could tolerate full dose meds was treating for babs and bart and lyme all at the same time. He was put on a 5 med combo. Took 8 months to work up to what that doc thought were therapeutic doses. But once he got the infectious load down he could tolerate very aggressive treatment.
Treating just one infection at a time did not work for him.
The ozone could potentially help with viral issues but in my opinion it will do nothing for lyme or babs or bart. Hubby actually did some blood ozone treatments that did nothing except lighten our pocketbook.
Bea Seibert
Posted by lax mom (Member # 38743) on :
That's my problem. My body cannot genetically detox. The bugs, toxins, meds, etc all just stick around and keep re-circulating.
I frequently have had to take med breaks when my body gets to the point where I cannot tolerate another dose. After a few days, my system would clear out and I would start back on the meds. (that is until my liver started acting up, now I'm treating slower than ever).
Work up very, very slowly. My LLMD had me take liquid Septra until I weaned up to the full dose.
Do lots and lots of detoxing. Glutathione is one of the only things that makes me feel better...which proves I cannot detox.
Posted by Blank (Member # 41088) on :
Thank you for your input. Sister sometimes feels like she is the only person that has this problem. Bea my sister also develops those movement disorder issues as well if she stays on killers to long of a period.