Hubby never did the Marshall Protocol but he did take Benicar for awhile. For him even a very low dose of Benicar lowered his blood pressure too much to continue with the med -- I think he stayed on the very low dose for about 3 months. Did feel like the med helped with brain inflammation but not enough to overcome the low blood pressure side effects.
Bea Seibert
Posted by CD57 (Member # 11749) on :
yes, I know several folks doing this. It is a spin off group from the MP site, mostly nurses administer and work with your doc.
Benicar is supposedly very good at blocking NF-kB, and many do well on this treatment.
Posted by Keebler (Member # 12673) on :
- I had a terrible experience with Benicar (low dose) two different times, many years ago, along with doxycycline. Kidney attack was just part of that. Vertigo and weakness was severe.
The first time I was not sure it was the Benicar but was better when stopped. Second time, certain it was a reaction. Never got past about a week with it. Glad to know so I'll never try that again, for any reason.
I had tested it out as I studied the Marshall Protocol (which was not for me as my Vitamin D levels were not elevated as required for that protocol).
I have heard of others who did okay but now we know of so many other things that can be used instead, for various reasons it may be suggested. Always another way if one way does not work. -
[ 07-03-2013, 05:01 PM: Message edited by: Keebler ]
Posted by Lymetoo (Member # 743) on :
I think it's dangerous to avoid Vit D like that.
Posted by kelmo (Member # 8797) on :
I know two women who did it for a year after they were diagnosed. It made them soo sick. It's a bad protocol. I agree with Lymetoo, you really need the Vit D.
Posted by Razzle (Member # 30398) on :
The Marshall Protocol ONLY applies to individuals who have the faulty Vitamin D receptor that causes over-production of 1,25 Vitamin D (the active form).
So get your 1,25 Vitamin D level tested. If it is high, then you need to pay more attention to the Marshall Protocol; otherwise, no need to avoid Vitamin D.
Posted by canga (Member # 37571) on :
I kind of like chronicillnessrecovery.org because they appear easier to read and understand. Original MP forums are somehow... orthodox? Like "olmesartan or dead" approach.
I mean Marshall's theory makes some sense to me, I even tested small doses of olmesartan on myself and like the antiinflammatory effect. But on the other hand this attitude about all Th1 diseases being one disease and the One Unique Drug in the whole universe that cures them being olmesartan - ehhh, not so much.
Finally, I think the most serious risk of MP is that it seems to be a one way ticket. You _may_ get better but even Marshall himself is still on olmesartan. And that really makes me careful - whole life on olme? And if I don't have money to pay for it? Or need go to a hospital? Or they stop manufacturing it?
Canga
Posted by canga (Member # 37571) on :
Moreover, MP is from the sarc world and it seems to help there.
When it comes to neuro lyme - I think there aren't many positive reports. Most of patients just got worse to the point they had to stop.
Canga
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by canga:
When it comes to neuro lyme - I think there aren't many positive reports. Most of patients just got worse to the point they had to stop.
- Exactly.
Posted by Cass A (Member # 11134) on :
I originally went to see ND Dr. A in Santa Rosa because they did Marshall Protocol. When I got there, he said he'd been an early adopter, but he'd quit, and now had all but two of his patients off it and onto a more antibiotic type of treatment.
I'd gotten tinnitus when I was taking high-dose Vitamin D, on the recommendation of a very knowledgeable friend. What could it hurt? Well, the tinnitus is still with me, 9 years later!
I did have my D 1,25 tested, and it was screamingly high, although my D 25 was low. Personally, I did restrict my sun exposure, got NoIR sunglasses to use, and stopped taking all Vitamin D supplements and cut back on eggs, which contain Vitamin D.
These actions did seem to help.
I now can't use the very dark NoIR glasses, but they worked great for me years ago. Also, now, I'm fine with eating eggs.
There are people with Lyme who are doing the Marshall Protocol.
Due to the likelihood of co-infections (I had babesia, as an example---needed Mepron for man months!), I would not consider the MP a primary treatment.