I'm nearing the end of my second month of treatment. I tested negative for coinfections. Right now I'm on bactrim and clindamycin.
The past two days I have had horrible chills accompanied by horrible hot flashes. I have not had this before even before treatment.
It feels like the flu times 100. I also have symptoms coming back I have not had in a long time. Beiing off balance and tremors and shaking.
Is this just a really bad herx or could something else be going on. I see my LLMD thursday thank goodness because I haven't felt this bad in awhile.
[ 09-12-2013, 11:19 PM: Message edited by: Lymetoo ]
Posted by Lymetoo (Member # 743) on :
Do you have fever? Bactrim can cause bad reactions on some patients.
You could "just" be herxing, but then again, it could be a drug reaction.
[ 09-12-2013, 11:20 PM: Message edited by: Lymetoo ]
Posted by Catgirl (Member # 31149) on :
Babesia.
Posted by lymeandme (Member # 42028) on :
Hello everyone, I have recently been diagnosed positive with Lyme Disease (1.23). From my understanding, I have probably been carrying the disease for a little over 2 years now. I live in Harris Co., Georgia and I am looking for a local LLMD. Can anyone help me?
Posted by Lymetoo (Member # 743) on :
Welcome, lymeandme! Please post over in Seeking a Doctor.
There is very little help in GA, but we'll find you a place to begin!!
Posted by Lymetoo (Member # 743) on :
jnathan.. I suspected babesia also. But please get back to us on the question I posted above.
Posted by jnathan (Member # 41040) on :
No fever, just feel like I do. And now have swollen lymph nodes In my neck.
Just basically feel like crap.
Posted by Jessig627 (Member # 36240) on :
I'm so sorry you're feeling this way.
I was on the same combo plus herbs and quite literally felt the same way you do. I felt like my hormones went off, my heart went off, anxiety through the roof, truly was insane.
I talked to my LLMD and was taken off the clindamycin and placed on doryx (form of doxy). I started that 3 days ago and tonight I'm starting to feel awful too.
I used to back down the abx a bit when I felt awful and then go back up when I began feeling better.
Talk to your LLMD about a med change. I understand that sometimes it's a herx and hitting something hard, but we have to be able to want to function. I literally felt like walking death on that combo so I can totally sympathize with you.
Good luck and let us know how you make out.
Posted by Lymetoo (Member # 743) on :
I bet it's babesia then. Not that you can't have fever with babs but I was wondering if it was a reaction to the Bactrim. I googled it and you can have fever with a reaction.
Posted by steve1906 (Member # 16206) on :
My llmd thinks babesia too. No treatment change. Is that normal? He just wants me to detox more.
He wants me to get liposomal gluthione (sp?) But its so expensive. Anyone have experience with it?
Posted by jnathan (Member # 41040) on :
My llmd thinks babesia too. No treatment change. Is that normal? He just wants me to detox more.
He wants me to get liposomal gluthione (sp?) But its so expensive. Anyone have experience with it?
Posted by beths (Member # 18864) on :
Clindamycin hits babs, so does bactrim. Maybe he's waiting till your bug load is a little down to add mepron or malarone. Detoxing sound good
Posted by lymeboy (Member # 24769) on :
Babesia. These symptoms for me are without a doubt babs.
What test did you take? The tests are garbage. Try an Igenex babesia fish. There are many strains of Babs, so the tests are only so good.
The fish test is pretty broad, so that is a good shot at finding a pos.
I would detox as much as possible, but you'll most likely need Mepron or Malarone, or both at some point.
Posted by TF (Member # 14183) on :
Here is what Dr. H of NY said about using glutathione to detox. From the 2010 lyme conference:
Herxheimer reaction:
Take-home message: DETOXIFY YOUR LYME PATIENTS!
It does NOT matter what antibiotic you give people, they will NOT get better without detoxification
For Herxheimer reactions: 2 Alka-Selzer Gold (no aluminum) in 8 ounces of water with lemon or lime followed by 6-8 capsules of glutathione or 1500 mg of oral liposomal glutathione.
70% will feel better in hours
[end of Dr. H notes]
There are plenty of old posts here about glutathione. Some have said the suppositories are the best. (Of course, IV is the very best.) Most top lyme doctors are telling their patients to take glutathione as it opens up the detox pathways.
Start a new post if you want more comments on this topic.
Posted by jnathan (Member # 41040) on :
Thanks, not sure what tests he ran but he said last month I came up negative for coinfections.
But when I told him my new symptoms he said that's babesia. And he wanted me to focus on detox.
My husband is out now trying to find the alka selzer gold now.
Posted by Lymetoo (Member # 743) on :
You may have to look for it online.
Posted by jnathan (Member # 41040) on :
Ok thanks we are having a hard time finding it.
Posted by TF (Member # 14183) on :
I found it at a local pharmacy. Call around rather than drive around.
Posted by Pinelady (Member # 18524) on :
Where do you live? Have you done any antiparasite treatments yet? moshe.blogit.fi/tag/infectious-disease/
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