Hi all! I just came from my LLMD and an now being switched over from Doryx and Bactrim to Tindamax. I was told to start off slowly and work my way up. Any experience anyone has or advice as to somewhat of what I can expect would be appreciated. I have 2 little ones that I have to care for and don't want to herx so bad that I can't function at all. :-)
Posted by gmb (Member # 23562) on :
Are you pulsing or taking every day?
I herxed pretty good on my first dose. I was suppose to only take two pills once a day on two consecutive days. I took one pill and developed abdominal pain within a hour. I passed that night.
Next night I took 2 pills and had less adnominal issues. Over time a 30 day pattern developed. Constantly improving.
Start real slow andcut pills in half if you have to. Your milage may vary
good luck
gmb
Posted by koo (Member # 30462) on :
I had no issues with it whatsoever. However, I had previously treated the cystic form with Flagyl which I think did a pretty good job on it.
Posted by Jessig627 (Member # 36240) on :
Hi! Taking them every day. I was prescribed 250mg 3x a day. He told me to start off with 250mg once daily.
So abdominal pain should be expected. From the little bit I've been able to read so far, abdominal pain seems to be the most common.
I'm starting armour thyroid as well because after a few months of feeling pretty decent, I've started feeling like road kill again. Turns out my T3 is low.
Thank you for your experience! I'm nervous starting them both but slow and steady will win the race.
Posted by kgg (Member # 5867) on :
Remember, we are react differently. The first couple of pulses I could still function. I may have had a little more energy. But still had to work at functioning.
The third pulse I was IRRITABLE. The kind of irritable where I needed and should have gone to the guest room and locked the door.
Where you have little ones I just wanted to warn you. Go slow with it!
Posted by Jessig627 (Member # 36240) on :
Thanks kgg! I'm going to go VERY slow. My biggest fear is not being able to function enough for my 2 little ones.
Posted by GretaM (Member # 40917) on :
I felt really good while I was pusling tinidazole.
Well about as good as a girl with lyme can feel.
It increased my energy for the week I was on it.
The week off returned to hell.
Posted by t9im (Member # 25489) on :
We attribute Tindamax to bringing our daughter back from the brink. Note it took 4 months to start seeing neurological improvements.
Had to take her off due to side effects.
On the side effects:
1) Over time developed allergic reaction - itching, rash, know to occur in patients with Urticarial Pigmentosa,
2) Anorexia also developed and this is something one has to watch out for. Once off the medication appetite returned to normal over 3 to 6 weeks.
Good luck this is the medication which reduced spirochete and cyst form by 90% in 3 days in Dr. Sapi's research work.
Posted by beths (Member # 18864) on :
I can't tolerate it-severe stomach pain and vomiting. I do much better on flagyl
Posted by Lymedin2010 (Member # 34322) on :
For me it was like taking nothing & I have 2 pages worth of symptoms.
Flagyl, on the other hand I took on 2 occasions & both times by month 4-5 noticed more energy & improvement.