Thanks for everyone who have helped me over the last few years. I was wondering if anyone has had success dealing with Protomyxzoa Rheumatica after dealing with Lyme?
I’ve was diagnosed with Lyme Disease in 2009 with positive tests and my CD 57 has remained low (18 - 24) before, during and after treatment. This has included may rounds of ANV, IV, Herbal and Hyperthermic treatment in Germany (which is supposed to get rid of Lyme was and for all, but doesn't destroy all infections).
I’ve rarely herxed on anything in the last few years with my symptoms slowing declining. Main symptoms are brain and memory issues, limb weakness, chest pain and numbness.
My Dr is going to put me on an anti parasite protocol. As my CD57 is so low, is there a possibility that this could be the main cause of my issues, particularly as all the other antibiotics haven’t affected my symptoms?
Have people turned things around from treating this instead of Lyme?
Any experiences or ideas are most appreciated.
Ade
Posted by Summer3 (Member # 35286) on :
I've treated for years also and my CD57 is 16 right now. It never got above 21. I agree that protomyxzoa could be the issue. I've treated all other co-infections aggressively.
Unfortunately my weight is too low right now. I tried to do the low fat vegan diet a few months ago because it is a major component of treatment for FL1953, but I started to get major increases in liver enzymes and heart arrhythmia's so I went off it. I do plan to try again once I stabilize somewhat.......
Posted by Adey123 (Member # 29328) on :
Thanks Summer 3
Sorry to hear about your low CD56 and symptoms. Did you recieve any anti protozoa medication at all or waiting for liver enzymes to die down before considering it?
Ade
Posted by Summer3 (Member # 35286) on :
Well I did artemisinin and now A-Bart, systemic enzymes, etc. Just can't do the low fat diet yet until I get my weight up a little and my heart and fainting under control. I don't have access to Rx antiprotozoals.
Posted by mlg (Member # 35383) on :
I think it is proto or some other parasites. Ive had big gains antimalarials and anti-parasitics with biofilm buster.
Posted by Adey123 (Member # 29328) on :
Thanks mlg
What anti protozoan/ parasite treatement where you having (rx or herbal)?
I've heard serrepeptase, Artemisinin / artesunate and Cumanda can be useful.
Ade
Posted by desertwind (Member # 25256) on :
I did well on Alinia, Malarone and ART. Also Byron White A-P. Diet is naturally very low fat so I did not make major changes to that. Add serrapeptase(sp)to the mix for biofilms as well.
Posted by mlg (Member # 35383) on :
I did 7 months of Mepron and zithromax. I then dif 1 extra month with bacterium. With pulsed crypto and art.
I then had to stop for a short while do to chronic kidney infections. Went to homeopathic doctor did homeopathy, PEMF, accupuncture. Did pekana detox.
then started rotating anti-parasitics sometimes with a base of zithromax and paragone, with colonics. Ivermectin, albenzs, mebendazole, Alinia. Had big improvements.
now on clyndamiacin with quinine. Herbs and heparin. Herbs are crypto and art.
Posted by nefferdun (Member # 20157) on :
If you have a low CD57 and you are positive on bands 41 and 23, chances are it is PR.
The low fat diet is critical. I did tons of anti-malarial drugs which helped get rid of the babesia but just made the PR stronger, because I was taking so much fat with them.
You might want to have your thyroid checked as PR can cause Hashimoto's disease. If you have a hyperthyroid flare, then you will lose a lot of weight. LDN helps calm things down.
Posted by Catgirl (Member # 31149) on :
quote:Originally posted by mlg: I did 7 months of Mepron and zithromax. I then dif 1 extra month with bacterium. With pulsed crypto and art.
I then had to stop for a short while do to chronic kidney infections. Went to homeopathic doctor did homeopathy, PEMF, accupuncture. Did pekana detox.
then started rotating anti-parasitics sometimes with a base of zithromax and paragone, with colonics. Ivermectin, albenzs, mebendazole, Alinia. Had big improvements.
now on clyndamiacin with quinine. Herbs and heparin. Herbs are crypto and art.
Thanks for posting this Mlg. :) I need to get my doc on board for this.
Posted by Adey123 (Member # 29328) on :
Thanks everyone!
In 2009 my western blot was negative on band 23 and positive on band 41.
Not sure if this means anything, is pr similar to Lyme in the respect that test results are never 100 percent accurate?
Ade
Posted by surprise (Member # 34987) on :
I'm not sure I agree bands 23 and 41 indicate PR (would like to see that reference)
but do agree going after parasites if you have Lyme disease is an excellent idea- hope it nets you more healing.
I did a lot of different herbs and drug rotations for parasites as well, couple of years.
Posted by Catgirl (Member # 31149) on :
Your symptoms could be lyme, parasites, etc. IMO, once you have lyme, you always have it. The same with some of the co infections.
You can check to see if you have proto simply by eating low fat and eliminating animal products (arginine). If you feel better, then there is a good chance you have it. You can do the test, but like any test, it's not 100% (false negative). Clinical symptoms are the rule of thumb.
I have bands 23 and 41 and have proto. I think there is more than one form of proto though (just like many forms of lyme, bart, etc). I also have a high CD57 (and I have lots of co infections), so I don't think you can link your number to proto. Docs just use the CD57 to monitor patient progress.
Posted by Nancy L (Member # 42733) on :
I read that low CD57 was specific for Lyme (Bb) alone.
Is there any reputable info out there that it also can indicate co-infections?
Summer3, the old standard "Prescription for Nutritional Healing" book by Dr. Balch MD (most health food stores carry it) advises (in my older edition anyway) to take a combination calcium/magnesium/zinc tablet and CoQ10 supp to stabilize heart rhythm. It has worked for me, even before Lyme.
Nefferdun, where did you find info on which combination of Igenex bands mean what?
Since my CD57 is low and I have been able to control most of my symptoms with herbal therapy (except brain & neuropathy symptoms), I assume I have only Bb. But I had a bunch of bands that were positive or IND, and would like to rule out obvious co-infections if there is some info on interpretation of the bands.
Thanks for any info on this.
I am going to get HBOT treatment for brain and neuropathy symptoms in January. Will give feedback.