OK. Doctor took me off antibiotics and antifungals in August for genetic testing. Long story but treatment was confusing picture.
Results came back negative which is awesome. Still having gut issues so will not be going back on antibiotics.
Can I take malarone with herbs?
Posted by TNT (Member # 42349) on :
Hi, soccermama,
What tests did you have run, and which company? That's great about no issues with them. You didn't have any mutation?
I'm not sure about the proper protocol for that combination. Usually they use Zithr. with malarone so no resistance issues; and alot of people pulse artemisinin with this. I did take malarone by itself briefly this summer since I am so sensitive to things. So, I would think malarone and herbs would probably be ok. You're doctor will have to work out the details.
I hope you can figure out why you're having gut dysbiosis. Hope it's not yeast; hope it's not parasites.
good luck
Posted by rowingmom (Member # 41213) on :
quote:Originally posted by soccermama: Still having gut issues so will not be going back on antibiotics.
Can I take malarone with herbs?
Malarone is not an antibiotic?
Our daughter has had as much healing with cryptolepis/sida/alchornea (WoodLandEssence) as she had with malarone. Same symptom resolution - executive function improvement, initiative improvement.
Posted by Catgirl (Member # 31149) on :
Great to hear your daughter is doing better!
I am on malarone and herbs. Malarone is a malaria type med (not abx).
Posted by soccermama (Member # 35101) on :
Thanks for the input. I had genetic testing for porphyria which is an inability to synthesize heme.
I have these terrible flares that come out of nowhere. Extreme abdominal pain, neuropathy, and nausea. Grateful that hydration and pain meds seem to help.
I seemed to do the best when I was taking malarone with zithromax.
So, I want to try some herbals to see if they are helpful.
Posted by TNT (Member # 42349) on :
soccermama,
What company has the genetic test for porphyria? Was it a regular blood test through a company like Labcorp or Quest? Or was it a specialty lab?
thanks
Posted by soccermama (Member # 35101) on :
I had the testing done at The Mount Sinai Genetic Testing Laboratory in New York City. My insurance covered it.
The results are 97% accurate so I can rest assured that I am negative.
I am considering treating for KPU because it is also related. We will see.
Posted by TNT (Member # 42349) on :
Thanks, soccermama, that's helpful info. I called the Porphyria Foundation in Texas today and they told me that Mount Sinai has a porphyria doc. (actually two docs) Another one in Philadelphia.
I hate to think what those tests cost without insurance!!
I didn't actually see the doctor my LLMD ordered the test. How cool was that?
What are your symptoms? I was tested for three types. The price was $1600 without insurance so I am glad that we have UHC.
Posted by TNT (Member # 42349) on :
That is great that you got that squared away and know that is not your issue!
That is cool that your LLMD is knowledgeable enough!
At least that test was covered by insurance. It's just insane what it costs to try to uncover our health "stones."
I just posted on the porphyria thread that Keebler brought back up.
j13girl describes how and what happened to me to the tee. My brain gets overload when I try to adequately describe what I am like and what has happened. I just cannot really understand it or describe it. I mean, I can, but I can't, if that makes any sense-my brain just doesn't work like it used to.
Posted by mojo (Member # 9309) on :
I'm on Malarone and Artemisinin. Just went off ABX due to severe diareahh and yest. (Zith and Septra)
We will eventually add some herbs.
A-Bart will be the first, then back on ABX or some Babs herbs.