Well, folks , Im relatively new to this forum( my first:) SO of you have seen urinary incontinence in my previous posts as one of my symptoms. I just wondered how many of you out there have experienced this too? I have probably had lyme for at least 10 yrs undiagnosed and maybe since child hood.. I have had some slight urinary incontinence over the last 10 yrs, when I jump, sneeze, dance ect. It concerned me since I have never had babies and am a relatively young woman. But in the last 3 months it has really been exacerbated.. When I cough hard I can loose about 1/2 my bladder , B4 i was a concern , but just a little tinkle.. What do you think could have caused it and caused it to worsen so much over a period of a few months? BACK TO kegels - lol thanks everyone!
Posted by Judie (Member # 38323) on :
My doc says incontinence is a bartonella symptom.
Posted by Lymetoo (Member # 743) on :
Well, that is twice I have suspected that bartonella might be an issue for you, Naomi. Has your Dr checked you for that?
Posted by Silverwolf (Member # 9196) on :
Hi <<<<< Naomi Anna >>>>>,
I believe Judie and Lymetoo are quite correct, I wear incontinence protection pretty much all the time, and I have Bart,Lyme and Babs, by clinical DX.
I hope you can get to a good LLMD!
Jus' Silverwolfi here
Posted by Healing in Santa Cruz (Member # 7798) on :
My LLMD says Lyme loves that area. But I also have Babs and Bart
Posted by Naomi Anna (Member # 43076) on :
Thank you all so very much ! I was tested for some co-infections by a regular ID doc.. Thought I was all clear, but I went to the LLMD and he says those tests mean nothing so I may very well have what you have suggested. I will read up on Batonella, thank you all !
Posted by Naomi Anna (Member # 43076) on :
Also I have ridiculously frequent urination, its nonstop and super annoying.... ??? Any one? thanks!
Posted by Pocono Lyme (Member # 5939) on :
I also agree bart. I had urgency with bart which initially got worse when I started treating it.
Another thing to keep in mind are hormones.
Posted by Ellen101 (Member # 35432) on :
As Pocono Lyme says hormones could be playing a major role here. Have you had your levels checked? Frequent urination can also signal diabetes. I have had some of the same symptoms for years. Every store I hit I need to check out the bathroom and I usually get up several times a night to pee. I don't believe in my case it has anything to do with lyme. Avoiding caffeine can help immensely.
Posted by GretaM (Member # 40917) on :
Hi Naomi,
Yes happens to me once in a while.
Mostly when the brain pain is at its worst.
Will realize I have peed myself when I feel cold.
I agree with Judie lymetoo and silverwolf, Pocono -bartonella.
I struggle very badly with bartonella. I am getting treatment for it. Have been treating for about 6 months now for bartonella.
The incontinence began when I started treating bart and was in a bad bart herx.
Ellen also has a good point. Be sure to talk this over with your LL so diabetes can be ruled out.
Posted by Pocono Lyme (Member # 5939) on :
Neurogenic bladder is listed under chronic bartonella here
Thank you all so much, I'll look into all of this 😍
Posted by lpkayak (Member # 5230) on :
My incontinance is very interrmittent
I am beginning to think it is related to inflammation of lower back vertebrae
It is not broght on by sneeze or cough-there is no warning
Posted by micul (Member # 6314) on :
It can be a psych issue also. Urgency can vary depending upon your frame of mind.
For example; If you are calm and working on a project that requires concentration, you may not have any urgency at all.
On the other hand, if you are out and about running errands, you may be worried about getting back in time to relieve your bladder. This can cause great urgency because of your frame of mind.
If you look at the symptom list for all the TBD co-infections, you can see that they all pretty much overlap to cover just about every issue (depending on which list you use). So really, it could be any one of them, or a combination that is the root cause.
Posted by randibear (Member # 11290) on :
Ive worn piddle papers for years. I leak when I cough, laugh, or sometimes doing something physical.
Im not having surgery tho.
Posted by GretaM (Member # 40917) on :
Sorry I forgot to add that mine doesn't happen with sneeze cough etc.
It is like LP says.
I don't even knwo I have a full bladder, or even that I am peeing or have peed.
Something to do with the nerves to my brain or to my bladder.
One time I didn't know I was peeing until I felt warmth in my socks. And when I realized I was peeing I couldn't stop. Had no bladder control.
Peed all the way down the hallway and when I got to the toilet...bladder was empty. Didn't have to go no more. Posted by Naomi Anna (Member # 43076) on :
WOW Great ! That must be challenging. Mine happens with a abrupt hard movement
Posted by Brussels (Member # 13480) on :
I had that at a certain point, during lyme. It was NOT PSYCHOLOGIC!!!
For me, this symptom totally disappeared with lyme treatment. It was not bladder infection, it was some sort of neuro symptom, I think. Just one in the middle of so many other symptoms, but a pretty annoying one.
Just keep treating!
Posted by gigimac (Member # 33353) on :
I have experienced urinary leakage since getting ill with lyme. it was never a problem before. Several months into being ill and I noticed undies are a bit wet. I don't feel it. It is a like a very slow leak. I still use the bathroom like normal but now things are always a bit damp. Hello, Poise! It sucks. I didn't know bart could cause this.
I hate doing kegels, it is such an uncomfortable feeling to me.
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