OK - so I am trying the "poor man's" urine test for Porphyria.
Today's second bathroom visit I collected urine in a little jar.
Put it outside in the sun - lid off - for hours.
Just brought it in after dark and was surprised to see that it had "separated". If I jostle the jar it looks like little clouds at the bottom.
Or cotton - but it's not toilet paper.
Epithelial cells? To be expected? Or? Thanks.
Posted by GretaM (Member # 40917) on :
Not sure...
But I am curious as to whether it turned purple for you Susan.
Posted by Lymetoo (Member # 743) on :
I would say yes to the epithelial cells. Not sure it's to be expected but you can see stuff like that in the urine of IC patients.
I hate to think how that smelled after being in the sun for hours! Posted by susank (Member # 22150) on :
Did my experiment again today. Urine did not turn dark either day.
It's cold outside. No smell.
Today's "specimen" was from first bathroom visit. Same conditions. Result: No separation. No cloudy anything settled on bottom of jar. Weird.
Interesting about IC patients and the the E. cells. I have IC and have felt "flarish" lately. No more apples I guess. Or tea.
OK - so yesterday I went to the nearby free-standing ER. Got a gram of Rocephin for resp. infection. Interesting - was my first ever IV push - no drip, bag or pump.
While there I had urine tested. All OK per the test. Typical.
The very nice doctor obliged my request - so my urine was sent out for the ALA and PBG Porphyria tests. Will see.
I discussed with him my past-year med intolerances. When talking about Porphyria - he said to be mindful that even if I do not have "P" - that with all my health problems - my metabolism might have changed. Makes sense.
I have never had a doctor mention that possibility.
I lucked out and got a great doctor at that clinic. He believed me when I said I had Lyme disease. No eye rolling. In fact he was interested and sympathetic.
Later I showed him a copy of my positive Bb culture test. I have started carrying a copy in my purse when seeing new doctors. Just in case the subject comes up - like why am I on Abx.
I have proof! I just hope that ALS can defend the test against the CDC!!!!
I think that Rocephin and Ceftin are OK Porphyria/P450-wise.
And in case I have Secondary Porphyria from Chlamydia Pneumonia - I don't think the Cephs would be a problem.
Posted by Catgirl (Member # 31149) on :
Urine not kept in the fridge will grow bacteria fast. It's sterile when it comes from your body, but grows bacteria in the open air.
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