just reading all your posts and wanted to chime in
That I have been were you are and progress can be
slow and discouraging at times. find a great LLMD
And work with that doctor. try to be in compliance
with your meds and try not to drive the doctor
nuts during a herx. dont take anything that the
doctor has not prescribed for you. that includes
herbs,tinctures,oils or anything else that can
interfere with antibiotics. get out of the house
and exercise and challenge your brain in all areas
like body position and memory recall,stand on one
foot and close your eyes then repeat other leg.Go
to your local support group and talk to others and
when you are better help others to see the road
more clearly. if your doc allows pulse and hit
instead of tindamax as a cyst buster i would try
it. waiting off antibiotics until it is unbearable
then hitting it hard for 1 month then stopping
again and repeating the protocol. this allows the
lyme to move from its hiding spot. again ask your
doctor and dont self medicate ever. for acid
reflux i would try to stop eating whole wheat or
any type of flour. it seems that it may be for
some people a gluten sensitivity. probiotics are
a must and no sugar and i mean none or you will
pay. there are many herbs and juices that are just
as powerful or more so then antibiotics are so go
slow with it as this is not a race. you can really
and I mean really set your self up for a herx that
can incompacitate you for months so slow wins the
game. lastly things to consider thru your lyme
tour is that a little prayer goes a long way and
in some people healed them. I know I am one of
them.. there is light at the end of the tunnel
it just takes time! many prayers for all lymies!
thanks for listening!
Posted by Ellen101 (Member # 35432) on :
Glad your doing so well and appreciative of the advice...but I'm not sure some I agree with. Patients should be able to turn to their doctor when herxing. As far as driving them nuts...not sure how that would be classified. They need to be there for their patients when needed. As physicians that is their responsibility and no one should feel uncomfortable contacting them. Sometimes a herx is not one at all, but could be a dangerous side effect.
As far as prayer healing those with Lyme, that's one I will reserve my comments on for now.
Posted by CherylSue (Member # 13077) on :
Thanks for sharing! How long did it take you to get to a "good" place?
Posted by overlyme (Member # 43455) on :
it took 8 years to get to a good place..i had a great llmd!
Posted by oceangirlSA (Member # 40873) on :
Did you take antibiotics for 8 years straight or did you have breaks in between??
Did you stay with the same LLMD all 8 years?
So glad to hear you are well!
Posted by nefferdun (Member # 20157) on :
I man happy for you that you have recovered but don't totally agree with your advice.
There is no standard treatment for the various infections even among the LLMD's. Some of them sell us bags of supplements and some of them don't suggest anything. There is usually nothing wrong with adding a supplement you think will help you.
Most LLMD's for instance know nothing about methyl cycle mutations. Some of the supplements the doctor gave me are bad for me because of my mutations. It is not my responsibility to educate her so I "take what I like and leave the rest". I discovered what works best to keep my protomyxzoa under control.
I would not advise anyone to blindly follow a doctor's orders. Many people are being treated for the wrong infection and if they did not protest, nothing would ever get changed.
Posted by kimmie (Member # 25547) on :
thank you so much for sharing your recovery...gives others hope
Posted by overlyme (Member # 43455) on :
nefferdun my llmd does! not all llmd are the same
though. (ellen101) some llmds can be called
directly day or night in case of a bad herx. very
few offer it so dont call unless an emergency..
mine offered it! and yes i used it, on supplements
and herbs there can be adverse reactions as well
as extreme herxes so be careful..that is why i say
to do what the llmd says and that is it.
(oceangirlsa) i took antibiotics the whole time
but kept stopping because of the herx.. I made
alot of headway once I stayed on the protocol
and worked thru the herxes...they were really
bad..i have been on this board many times
before looking for answers. i had to renew my
login because it had been so long that i had been
on here. we are getting better and i want you
all to know that we are putting lyme behind us!
you will get better just takes time...i had a
really good llmd that understood it better then
most doctors and that is why i got better..
Posted by betty1939 (Member # 18240) on :
Thank you Overlyme for the encouragement. Do you mind PM me and letting me know the name of your LLMD?
Posted by robbiem (Member # 32092) on :