I,ve been treated for lyme, bartenella and babesia for the last 8 years. my doctor (lyme literate) feels I am cured, though I have some symptoms left (tremor in left hand,numbness in part of my left foot and difficulty walking - staying balanced).
My last test was a PCR by advanced labs it was negative, my CD57 is159. My doctor thinks I may have parkinson's or possibly brain damage from the lyme.
I was given sinement (sp?) for parkinson's which made me very sick and only increased my symptoms and added more ( intense anxiety).
Also almost all antibiotics I have taken in the last two years I've reacted to with a negative side effect. Is it possible i am cured of lyme and coinfections? any ideas?
Thanks, Rose
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Breaking up your post into a couple lines for easier reading for many here -
[ 04-11-2014, 12:42 AM: Message edited by: Robin123 ]
Posted by lpkayak (Member # 5230) on :
A pos pcr is for sure pos-unless they screwed up in the lab
A neg pcr means very little
There are many neg pcrs when the person is infected
Your doctor might be correct but the decision not to treat should be based on a different test than pcr or clinical signs
Posted by Robin123 (Member # 9197) on :
If there were no spirochetes in the Advanced Labs blood sample, you'll get a negative result. I've heard that sometimes the test has had to be done a couple times and then it shoes positive. Kind of expensive, if you ask me...
I wouldn't use the term "cure," but rather, management.
Others will be along with comments soon.
Posted by Eight Legs Bad (Member # 13680) on :
Hello Rosepaints,
A PCR can also be negative if the primers used don't match the particular strain of Borrelia that you have. There are a huge number of strains, the DNA on the plasmids is particularly variable.
Are you absolutely sure your doctor is "lyme-literate"? The problems you describe are serious. It's usually the Denialists who put continuing neuro probs down to "damage after the infection is gone". How does he know it is gone? There is no definitive test to prove Borrelia is eradicated as yet, and you still have symptoms.