so I've been reading a lot lately about these drugs because i want to try levaquin but am really really scared. Other then the tendon issues a lot of the stories when you google it, sound like symptoms from Lyme or bart being stirred up.
Does anyone else think that too.
I've taken rifampin, lots of it, for almost 2yrs of my treatment in the beginning because i tested positive for brucella as well but now that bart is coming out again, i need to retreat.
Should i just stick with the rifampin again?
Posted by surprise (Member # 34987) on :
I would talk to your LLMD about it, get their take and experience.
Posted by surprise (Member # 34987) on :
P.S. Yes, I have read some of those stories, too, and some absolutely struck me as Bart die off-
it is much more prevalent than people think (obvious to us).
Posted by TNT (Member # 42349) on :
I agree, jlcd1, I have thought the exact same thing.
I wonder if people's adverse reactions are not just a sub-clinical, undiagnosed (stealth) infection that is being hit too hard and too fast (or is simply just stirred up, like you said); and this causes damage in the nerves and joints.
Even the tendon stuff could possibly be this, too.
But, floride is very toxic, (and, though added to the original quinolones to give them more penetration), could very easily be the cause of some or all of the damage, too.
I am no doctor, scientist, or chemist, so consider my thoughts just that... JUST MY MUSINGS.
Posted by TNT (Member # 42349) on :
Also, if you have done fine with Rifampin, maybe you ought to check out this thread:
...a few people are having good success with this Rifampin combo for bart.
Posted by jlcd1 (Member # 18138) on :
yes these are just my thoughts as well. No expert here. I'm sure a lot of us are thinking the same thing. Thanks for the link.
Posted by Lymetoo (Member # 743) on :
Fluoroquinolones cause nerve pain for me. They are on my ALLERGIC LIST, even though I'm not allergic. I will never take them again unless I'm dying.
hmmm... maybe not then either! Posted by randibear (Member # 11290) on :
both cipro and levaquin gave me very bad leg cramps. i couldn't exercise or even climb stairs.
they're a no go for me too.
Posted by cottonbrain (Member # 13769) on :
Please believe the nightmare stories you hear about levaquin. I used it for a couple years and wish I had never gone near the stuff.
It gave me tendonitis in both Achilles and in the large tendon at the back of the hamstring. This seems to be permanent and does not heal; it is not just an infection being stirred up. Be careful when you take these meds and if you even think you are getting tendonitis, consider dropping the med.
Tendonitis is not like a muscle or joint ache. It can be much more painful; the stories are real.
Posted by linky123 (Member # 19974) on :
Levaquin blew up my heel. I had to wear the boot for months.
It seems to be ok now, but I wouldn't touch the stuff again unless I were dying.
Cottonbrain, have you tried taking Mg? That helped me the most.
If you get loose stools from it, you can take Remag or ionic mg in the liquid form.
Posted by jlcd1 (Member # 18138) on :
Thanks everyone. I will probably be too scared to go near it again.
Posted by Lymetoo (Member # 743) on :
I am.
Posted by randibear (Member # 11290) on :
I can't take either. I got leg cramps so bad I could barely walk nor do stairs.
no way would I even try again.
Posted by Keebler (Member # 12673) on :
- With apologies to those who have been damaged for the frightening word "permanent" in the headline below but all one can do now is to focus on the "may" and know that there are things that might help.
For instance when I see that collagen can be damaged, my mind goes immediately to what might THEN offer collagen support, etc. Follow the points of damage with support.
Scroll to end for a few links he lists for support sites where others are finding their way through this.
![[Smile]](smile.gif)