Hi all! I had lyme many years ago. I had the bullseye rash and thanks to you guys, went to the doctor right away for a diagnosis. Ended up being on antibiotics for over a year and am pretty much symptom-free.
But there is one thing that I never had before lyme that I have now and it's kind of hard to explain. It is very strange.
I don't like seeing alot of smaller black things in one area. Like for instance when they seal all the cracks in my road with the black zig zags. Or seeing alot of black birds all together.
It give me kind of a sick feeling. Has anyone experienced anything like this before? I know it is very strange, but it is something that I am left with now.
Julie
Posted by Phoiph (Member # 41238) on :
Julie2763...
Do you get the sensation only when you or the objects you are viewing are moving?
How do you do with reading print on a page?
Posted by Julie2763 (Member # 2841) on :
No, just looking at them. Reading doesn't bother me at all.
Posted by lpkayak (Member # 5230) on :
That is a wierd sx. Hope you get some answers
Posted by lymie_in_md (Member # 14197) on :
I found the following might have something to with it, but I'm certainly not sure. You may have some smaller variation of this syndrome. Lyme does alter our bodies and our mind. All of which is reversible I believe. I sometimes think some of this disorientation involves the pineal gland. Best to talk with a very good specialist in this area, I trust non mainstream doctors more than mainstream (Like IDSA).
- This is not at a weird symptom. It makes perfect sense. For several reasons I can think of with brain processing . . . eyes themselves . . . but I'll focus on just the ears as that's been my area of exploration, so to speak.
Sounds very much like the VESTIBULAR system to me. I have the same issue - but I have trouble will all kinds of contrasting shades, everywhere.
Bet if you were to look at bold stripes, houndstooth, chevron patterns, you'd go spinning a bit. Mini-blinds?
Anytime nausea goes with what you see, think ears - especially where motion is also involved. But just the motion of our eyes moving to see it - that's all the motion needed to upset the inner / middle ear system.
Then consider inflammation as being involved even if there are more complex vestibular or brain calculations that are getting mixed up.
The grab the MAGNESIUM, BERBERINE, FISH OIL, & GINGER CAPSULES.
Next: be sure your LIVER & KIDNEYS are not being pushed & your support stays on board;
be sure you are not taking any ototoxic Rx or OTC item - or chemicals (even scents) that can be ototoxic even if "just" breathed in, especially in a car the smells can be very toxic. Air out any car before getting into it..
Detail below. -
[ 11-09-2014, 03:20 PM: Message edited by: Keebler ]
Posted by Keebler (Member # 12673) on :
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
[ 11-09-2014, 01:17 PM: Message edited by: Keebler ]
Posted by Keebler (Member # 12673) on :
- Now, for the practical: try not to look at it. Focus your eyes ahead as much as possible to the point to which you are going -- or if you are still, just to a nice place to look at that is not a "busy" scene.
You might have your depth perception checked but this really sounds more vestibular. There are certain tricks to where you place your focus that will help. My fingertips are screaming now and I can't elaborate but a vestibular therapist might help. -
Posted by Keebler (Member # 12673) on :
GINGER CAPSULES can help relieve nausea and dizziness. But it needs to be kept up at a therapeutic dose that only the capsules seem to provide. Although the tea can help a bit.
Take Ginger Capsules a couple hours away from Rx. It has some antioxidant properties and it may speed Rx through too fast if taken at the same time.
[this type is excellent for those with lyme as there is no sudden twisting of the spine or neck - which should never be done with some who deals with lyme]
There is the cranial-sacral and also the visceral (gut massage). Not all trained in cranial-sacral also have the visceral training so do ask first. If the sensation of what you see with strong contrasts churns your stomach a bit, visceral manipulation may be of help, too.
Some who are trained in this (such as a D.O. or P.T.) may be covered by your insurance. -
Posted by Phoiph (Member # 41238) on :
Brain issues (injuries, infections, toxicity, etc.) can cause (directly, or indirectly) many sensory processing issues, in this case, visual.
This can manifest in any number of ways, including difficulties with perception, special orientation, contrast, processing patterns, reading print, etc.
Most of the time, the brain compensates, and these issues resolve on their own. Sometimes, however, there are residual or ongoing effects.
Your visual system is tied closely with your vestibular system (as Keebler pointed out), so vertigo can be an issue (i.e., a "sick" feeling), even though you don't actually feel "dizzy".
I have a background in vision/visual impairments, and have a colleague who is an optometrist that specializes in such functional visual issues/impairments. If you like, you can PM me and I'll ask her if she recommends anyone in your area that may be of help...
Posted by Judie (Member # 38323) on :
Some antibiotics and other drugs can cause vision damage to parts of the eye like the retina which isn't obvious in a typical eye exam.
It's worth it to get seen by a ophthalmologist/retina expert who can do a full retina exam with lasers and high tech equipment.
Your mind might be trying to make sense out of something that seems off, that might be why you feel queasy from this.
I have retina damage from a drug which causes some weird things in my vision too with processing images.
At the end of my vision when I look a certain direction I see strobe lights when light is at a certain angle. Straight lines are bent or double. It was subtle at first and things just felt off.
Glasses can make my eyes 20/20. but the quality sucks.
Visual tracking is all weird (like what you said about clusters of images and eyes trying to process or make sense out of them).
Posted by lymie_in_md (Member # 14197) on :
Just trying to give you some ideas to explore ( I still believe the pineal gland is involved with many visual anomalies and it can't hurt to help it like a fluoride detox):
Some people find that certain visual surroundings can trigger dizziness, or make existing dizziness and balance problems worse.
For example, some people feel disorientated and dizzy in supermarkets when they are surrounded by tall stacked shelves, or in crowded train stations when they are surrounded by people.
Others find that the sight of fast-moving or spinning objects can cause dizziness or make their dizziness worse.
People might experience dizziness in a car when they see fast-moving scenery out of the window, or when they see fast-paced action on a TV or cinema screen.
People might also experience dizziness when they are adjusting to new prescription glasses
Visual vertigo can also occur if people are experiencing problems like reduced or blurred vision. You should speak with your GP, optician or specialist if you experience problems with your vision.
.............................................
Breaking up a paragraph for easier reading for many here -
[ 11-11-2014, 04:21 PM: Message edited by: Robin123 ]
Posted by Julie2763 (Member # 2841) on :
Wow - thanks for all the info everyone! I will research what you have all suggested.
It's not something that is really bothersome, because if I see something that bothers me, I just will look away lol.
I was curious if anyone else had this specific symptom? with their lyme.
Thanks again,
Julie
Posted by poppy (Member # 5355) on :
This is not really the same thing, but your story reminded me of something I experience. Flashing lights, driving down a road where tree shadows create alternating patterns of light and dark. Makes me feel odd, dizzy.
I always assumed it had something to do with the migraines I had occasionally for years.
All of this long before lyme.
Posted by Robin123 (Member # 9197) on :
Don't know if this would help at all, but I drink mangosteen juice to stop all Lyme eye symptoms. I drink the Mango-Xan version as it's the most tart. Mangosteen juice is found in healthfood stores and online.