I went to a good llmd yesterday. Finally feel like a found a pretty good dr.
Has anyone been on pantoprazole?
The only thing that concerned me about the apt is that I still think I have
aseptic meningitis or encephalomyelitis. The dr didn't but I have all the symptoms of both of these conditions. Would plaquenil,
cefdinar, clarithromcyin or minocycline help with those conditions?
Posted by Lymetoo (Member # 743) on :
Listen to the doctor!
Sounds like you have a good one.
Posted by Keebler (Member # 12673) on :
- Encephalomyelitis is a condition, not a disease. It can be caused by MANY different things, infections. Lyme is one cause.
Same with meningitis - a condition, not the disease itself. Its CAUSE can be any number of infective agents, including lyme.
Still, it can be a bit of a jump to think that symptoms that fit either / both of those are always those. Symptoms from lyme can be very profound, indeed, but they may not fit the exact pegs we think.
If your doctor is a well-respected and experienced, real LLMD, you should be in good hands. -
[ 12-23-2014, 05:10 PM: Message edited by: Keebler ]
Posted by TF (Member # 14183) on :
Yes, plaquenil, cefdinar, clarithromcyin and minocycline will help with meningitis or encephalomyelitis because all of these meds treat lyme disease.
Lyme causes the encephalitis and meningitis-type symptoms you are having. Many of us have had these symptoms. Treat the lyme and they go away! Yeah!
Posted by DaleS (Member # 44571) on :
Thanks for the replies and advice. You guys are awesome! Now I just have to figure out the money part ha.
Posted by DaleS (Member # 44571) on :
The dr I saw had been a llmd for 14 years so he does have a lot of experience. When I walked in the door
a lady told me he was the best dr she has seen and finally because of him she has some hope. She said she
has had lyme for 4.5 years.
He spent 2 hours with me. I've decided to dump the other llmd that I saw. When I compare the two its like
comparing cube steak to a porterhouse.
Posted by Keebler (Member # 12673) on :
- the other one may not have been a true LLMD. Just because someone says they treat lyme does not make them a true LLMD. And some may be just starting out with the discovery process. The learning curve is mighty steep.
Glad you found someone with a fuller range. Keep hope. -
Posted by DaleS (Member # 44571) on :
Thanks, me too. I would have to agree with you on that.
Posted by linky123 (Member # 19974) on :
So glad you found someone you like! Posted by poppy (Member # 5355) on :
There is a steep learning curve in treating lyme. Some docs are good at the entry level, some intermediate, some can handle the most difficult cases.
So, it is not a black mark against one that he/she has not made it to the final category. All of us have to learn, and only time and experience will make us better. This goes for all difficult endeavors, and medicine is no different.
Posted by poppy (Member # 5355) on :
And it would be good if you would stop diagnosing yourself and finding terms that will scare the heck out of you. Just go with the treatment and see where it takes you. And have a LOT of patience. As is always said on this forum, treating lyme is a marathon, not a sprint.
Posted by DaleS (Member # 44571) on :
You are right about the other dr I saw. He was more of a entry level dr. The one I currently have can hande more complex cases. I shouldn't complain about the other dr and should be
grateful for all the people he has helped with lyme.
Google is my worst enemy. I've been self diagnosing for 10 years, sometimes even without google. 2011 I developed muscle twitches and my fingers would move involuntarily so I googled
it and dr google said I had als so that scared the crap out of me for a couple of months until i went to the drs. I will go with the treatment. The llmd said the same thing. Lyme is
a marathon. I go back in march and he didn't expect my symptoms to be better, maybe slightly he said. Its just hard because i feel so crappy and just want a quick fix but I know
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