Has anyone out there developed sudden craniofacial pain?
Mine developed mid December in the middle of Dr. J's treatment protocol. It was triggered by a hyperstartle. I am getting worse and worse.
It feels like something is pinched inside my head. Its even going to my left eye. Basically whole left head and face like occipital neuralgia, temporal neuralgia, trigeminal neuralgia and optic neuritis all in one....
I am BEYOND miserable. Soooo much pain.
New LLMD says treat for bartonella. Any thoughts?
Posted by Tincup (Member # 5829) on :
Ugggg! Sorry to hear your face is hurting you. And yes, I'll keep my mouth shut after that last comment. ~smile~
Yes on the cranial pain, not only me but others I know. It's nasty!
Knowing what I do now, as compared to the old do this and that to see what works...
I'd go to a chiropractor first. Of course if it is related to the infectious/inflammatory process they can't cure the infections, but they may be able to address the nerves and reduce or eliminate the pain for now.
Then you can look into and address why it hurts.
I'd also like you to ask a doctor of your choice about other tests available. I don't want to assume it is TBD related and miss something else that may be of concern. OK?
Hang in there!
Posted by Robin123 (Member # 9197) on :
You might want to try a craniosacral massage person, and I mean the cranial part, not the sacral part.
Head bones can get locked in place and affect cranial nerves. I had this happen to me dentally last year and cranial work instantly stopped the pain.
You lie down and the practitioner cradles your head in their two hands and gently checks for head bone movement and pulses - not sure what kind of pulses these are - the doc - yes, it was my chiropractor who did it - said he was checking for pulses too.
When everything checked out for him, I got up, and no more pain! I also felt a lot of relief from pressure in my head.
Posted by Lymetoo (Member # 743) on :
I have nerve pain in my head too. Sometimes it's really brutal.
Have you talked to DR J about it? or other doctors? What has been tried?
I have found that taking curcumin 3 times a day helps a tiny bit.. at least it keeps the inflammation down.
I have also been triggered by foods containing salicylates. I seem to be very sensitive to them now.
Hope you find the answer for yourself.
Posted by lookup (Member # 44574) on :
Homeopathic Hypericum is for nerve pain. There are a few homeopathics for nerve pain but Hypericum is the most used one. Nerve pain is pretty fierce. I, personally, would choose, at the store, a potency of 30c over 6c. The remedies cost around $7. You can get higher potencies through a homeopath if needed.
Aloe, inner leaf, from Lily of the Desert is also good for inflammation. It can be used internally and externally.
Mag Phos6x cell salt also looks interesting as it has an affinity for the white fibers of the nerves and the muscles and could address the "pinching" sensation. The label says for an acute situation one can take 4 pellets every 15 minutes for up to 8 doses. Space out with improvement. Hyland brand is in most health food stores and goes for about $12.
Posted by mamalicious (Member # 43611) on :
Thanks! I need some relief it keeps getting worse not better. I've been on an antibiotic break for a month trying to get pain under control with no luck. So scared of the herx going back on..My involuntary movements and seizures are increasing so I don't know if I have much choice.
Ive tried a lot. PT, Craniosacral, Triliptal, detox from ND. So I will try some of these options...
I hate this disease!
Posted by lpkayak (Member # 5230) on :
I occasionally need neurontin for that pain. I cannot live with it. Once i had break thru pain on neurontin and the er gave me a stronger drug. I cant function normally long term on these drugs but sometimes taking them seems to stip the cycle and the pain stops
If caused by lyme you would have to treat that too
Good luck
Posted by Lymetoo (Member # 743) on :
Neurontin does sound like something to try at this point.
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