I've been reading relentlessly and I'm tired out...
I have white matter demyelination that gets worse with each year's MRI, severe central sleep apnea, severe obstructive sleep apnea, cardiac arrythmias (around 200 bpm at times, NSVT as well), severe hypoglycemia (glucose can drop to the 50s, 40s, 30s... has dropped 20x in one day before... has dropped tens of thousands of times, moderate/severe visual disturbance, diagnosed already with serious cognitive impairment and memory loss, I can no longer drive, severe steattorhea (fat malabsorption in stools), severe Small Intestinal Bacterial Overgrowth that Xifaxan cannot defeat... and about 50 other symptoms / diagnosed conditions....
The worst part is, I'm newly married (2.5 years)... and now my wife has fallen ill in the exact same way as myself.
We've exhausted our finances, we both make together around 800 per month... so obviously we can't afford an LLMD, as none around here take insurance (which I have a good plan).
So, with our issues being primarily neurologically involved... are herbals effective?
Which herbals are most effective for neuro-involvement?
We are trying to get a consensus on the best answer as we have very little money left, and we both are nearing the point of requiring full-time care for us.
Thanks, guys, God's good even through this.
Posted by Keebler (Member # 12673) on :
- Start with BERBERINE while you sort out beyond this. I do not think this will be enough (it's not for me) but it's all I can afford now and is helping.
This does not seem to drop my blood sugar too much at all (as you mention hypoglycemia) and I can take on an empty stomach. But best to start out just before a meal or good snack.
Are you getting enough food? Enough complex carbs and not just vegetables but also non-gluten grain "like" foods.
Black Rice helps me the most to prevent drops in blood sugar. I have to include the dark rices, etc. or blood sugar drops like a rock. Vegetables do not carry over glucose long enough.
BERBERINE – LINKS SET -
Posted by Keebler (Member # 12673) on :
- Be sure to avoid cell phones as much as you can, especially keeping them, chargers, computers, etc. out of the bedroom and as far away from you as possible when not talking.
Try not to use a cell phone, if that is possible and stick to land line phones when you can.
When you are not using your computer, move away from it and turn off your WiFi if you use it - other than for the time you are actually using it.
This really matters. -
Posted by Keebler (Member # 12673) on :
- Re: malabsorption
Have you been assessed for celiac? A genetic test is best. Others can fail.
Are you gluten free? If not, that might help a lot.
That drug you mention is used for IBS. IBS is often a symptom, not a diagnosis . . . Celiac often the cause (but lyme or other stealth infections / parasites) can be, too.
If you are on a gluten-free diet, some could be sneaking in. Back with some links to help.
My eyes flicker & spasm a lot so I can't read all your post with tight text but I hope I spotted the major points. Good luck.
Oh, Berberine really helped my eyes a lot. My inner ear is responsible for a lot of my eye spasming, though, but Berberine helps in other ways. I stopped even needing my glasses to watch TV. Can even read the subtitles now for foreign films (if my brain can process that action). -
Posted by Keebler (Member # 12673) on :
- If you are on a gluten-free diet (and if you are not, your doctor has failed to recommend that),
still, some could be sneaking in. See the "HIDDEN SOURCES OF GLUTEN" links here & other aspects that could be affecting the malapsorption:
Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all).
GMO foods that destroy the GI Tract; Gluten; Dairy. -
Posted by Keebler (Member # 12673) on :
- cardiac arrhythmias, you mention
- magnesium is the first order of business. heart issues of all kinds are, of course, often connected with lyme yet magnesium can be a wonderful support.
Be sure any Rx or OTC product you take does not affect QT rhythm.
Good State - the same place as the Berberine I suggested for a start - has a very nice and affordable Ionic Magnesium, too.
Topic: MAGNESIUM - Informational Links set -
Posted by Keebler (Member # 12673) on :
- The Rx you are taking for the IBS could be affecting your heart rhythm. Maybe not but it's not a question they actually bothered to explore, as they should have.
This is the most recent search result I could find. Maybe something more recent than 2010 but it just did not show in a cross search.
A thorough QT study was not conducted for rifaximin.
Although the systemic availability of oral rifaximin is limited, rifaximin is systemically available to an appreciable degree.
The systemic exposure to rifaximin in the new patient population . . .
. . . As such, the current marketing experience with rifaximin can not reasonably allay the cardiac safety issue in terms of QT prolongation potential of rifaximin in the proposed patient population. This issue remains to be addressed. . . . -
Posted by Catgirl (Member # 31149) on :
You might want to treat for parasites. Don't bother testing as the testing is pitiful. Dr. K treats all of his patients for parasites first. I wish that I had done it way back then.
Visit the PARASITE WARRIOR'S THREAD (lots of info). Lots of things to choose from (herbs, salt/c, MMS, etc.
Posted by Keebler (Member # 12673) on :
- Catgirl has a good place to begin, too. Parasites usually travel with lyme and some LLMDs treat parasites first. Parasites can cause all kinds of gut and brain issues. One formula that many seem do well with for starters is:
My sis has antibiotic refractory autoimmune RA. Meaning, though Bb was destroyed, her body is still reacting because Bb's friggin proteins are too much like "self".
Her blood type is A.
I can't help but wonder if refractory autoimmune MS happens to those with blood type B.