Really struggling with my GI tract and yeast-dysbiosis.
Herxhiemers are just to severe and neuro when I take the smallest of antifungals and symptoms in general are really neuro.
Im giving Cholestramine a try,starting at a low dose to see how I do.
Anyone have any good or bad experiences with cholestramine,especially clearing out neuro stuff.
Thank you,hoping somethings going to work.
Posted by sickofthepain (Member # 39579) on :
I have had a very good experience with choles. It helped with my migraines esp. It can be stool binding so you may want to balance it with magnesium citrate but I have been very thankful for being able to use it.
Posted by shoeless joe (Member # 45835) on :
Thank you sickofthepain
Thats encouraging,
Im tired of all the neuro and heroes I can't get through all due to dysbiosis-yeast.
Im hoping this mops up some toxins to calm things down.
Yes,I am worried about constipation and will be taking magnesium and extra water. HOPE
Posted by TF (Member # 14183) on :
Just be aware that you may need a lot more than magnesium and extra water. The constipation can be horrible!
Previous posts call tell you the stories. One person had to go to the ER.
So, starting slow is an excellent idea. Do whatever it takes to avoid constipation.
Posted by lpkayak (Member # 5230) on :
Csm is being used alot now by those fighting mold illness. Its best to get the kind without sweetner. They start at 1/8 teaspoon a day and work up to 3-4 packets a day. Theyy take mag citrate an C to keep bowels going. Even occasional senna or other lax but as high as necessary with mag and c should work
Dont forget to take csm two hours away from.medicine and supps or they will detox out the meds
I was one hospitalized for constipation years go. Ten days. Because of that history they started me on welchol pwder. The pills are harder to tolerate. You start with same dose(1/8 tsp) but goal is to work up to one or two packets a day. So it is easier to take welchol but it is not as effective. Some do welchol first then switch to csm
There is a large number of mold patients who also have lyme but cant get rid of the lyme. When , on these drugs both mold and lyme sx go awsy. They believe tht is because lyme toxins are being removed
Posted by S13 (Member # 42830) on :
tbh if you're really struggling with yeast and dysbiosis then cholestyramine is probably a very bad idea. You are removing bile. Bile is meant to control bacterial growth in the small intestine. So you are further degrading an already compromised GI tract.
Posted by shoeless joe (Member # 45835) on :
hmmmm,now Im at a los at what to do.
I won't do anymore until I know I pass this little dose I've done.
Im so nuero and can't get through herxhiemers ,be nice to clear the head and neuro out.
I don't know,have to give this some thought.
Maybe back to charcoal and what little garlic I can take..
AAAH,decisions, just want some of this neuro stuff to clear out.
Posted by Lymetoo (Member # 743) on :
Why not try 1/2 capsule of s.boulardii .. or 1/4 pill of Diflucan .. whatever it takes to get rid of the yeast.
Begin somewhere.
I HATED CSM for all of the reasons stated above.
Also .. diet is ESSENTIAL to getting rid of yeast.
Posted by shoeless joe (Member # 45835) on :
Ive tried it all,s bollard and every probiotic,many antifungals including diflucan,nystatin,garlic,caprylic acid,eta.
Severe herx on everything,extreme neuro and just can't get through them.
Pushed myself to scary sick trying to get through them.
Ive gone extremely slow and still can't get through them and get improvement.
I actually feel a little better today after doing that little dose of CSM yesterday,coincidence,very well could be but sure hoping not.
I did have a good BM today so since I feel a little better I will push on with another small dose of CSM.
I no longer get my hopes to high especially after one day but heres for hoping.
Posted by Lymetoo (Member # 743) on :
What about taking one tiny dose ONCE a week?
Are you eating starches and sugars?
Posted by shoeless joe (Member # 45835) on :
Nope,no starches or sugars.
Im pretty confident in saying Ive done the anti yeast diet as stict as anyone for months on end with no substantial results yet as soon as I take any anti fungal agent I herd SEVERE after about 4 days
Yes I can take a tiny dose once a week and have done that but haven't made any progress.
Ive tried it all and should have made progress but haven't.
If I eat carbs I get worse,if I take any anti fungal I hex severe.
Hopefully I can continue CSM and see if its been toxic overload blocking my way all this time.
Second small dose in me about an hour ago. Hope some more
Posted by TF (Member # 14183) on :
I am cheering you on, joe. This could be the key!!
Posted by S13 (Member # 42830) on :
Try to go slow and see how things go. Everyone is different.
Having said that, it really sounds like your dysbiosis is causing severe troubles when you are trying to kill of yeast. Know that yeast is a normal part of your gut flora, so there is both good and bad. Diflucan is not selective, it will kill a lot of fungal forms. And when fungal forms disappear, there's even more room for opportunistic pathogenic bacteria to grow and wreak havoc.
I would advice looking for things that make you feel better. Endless herxing is not the way to go, its just a sign from your body things are getting worse.
Have you ever checked the presence of good flora in your gut? Maybe you completely lack certain groups which will make fixing your gut very difficult. In this case prebiotics will just feed the bad guys and probiotics are just overwhelmed and cant colonize the intestine effectively.
Posted by shoeless joe (Member # 45835) on :
Thanks TF,lets hope.
S13 Ive had comp.stool analysis,Don't know if I have had a test for good flora.
What is the test called to check flora.
I herx like hell on small amounts of garlic,often wondered if its killing the good with the bad.
What kills just the bad and not the good.
Cant get probiotics in,maybe VERY slowly but one probiotic 4 days in a row and severe herx,no kid din around.
Battleing this for years now,even tried a few fecal transplants.
I know its fungal cause I herx on every anti fungal agent and get real sick when I eat carbs for a while.
Ive tried to correct this gut thing but haven't been able to.
Always to much herXing,maybe and hopefully this is what I need to allow me to treat.
Ive tried plenty of detox stuff before but never CSM.
Still a little better today,see what day 3 brings. Hope for us all,ya hope!
Posted by S13 (Member # 42830) on :
Im not sure what its called. Something like microbiome test, or comprehensive digestive stool analysis. So maybe yours was tested before? Did it show the levels of good bacteria and candida in your stool?
There is sadly nothing that kills only the bad and not the good. That is why its so hard to get rid of dysbiosis with killers.
quote:Now, here’s the really tricky thing or the catch-22 about this, which is generally the extent to which you react adversely to probiotics and fermented foods and prebiotics, which we’re going to talk about in a second, is roughly proportionate to how screwed up your gut is.
Are you still able to tolerate fiber or prebiotic foods? Like onions, leeks, beans etc? And did you have any improvement on the fecal transplants?
I think its difficult to see candida seperate from dysbiosis. When you have candida, you have a screwed bacterial composition. So what do the carbs feed? Could be candida yes, but dont rule out the bad bacteria yet since they go hand in hand.
Im not totally sure but i think some of the specific prebiotics feed just bacteria, not candida. Those are fructans (Inulin, FOS) and galactans. So perhaps you could do some experimentation with that?
Posted by shoeless joe (Member # 45835) on :
there were no flags in my stool analysis and Ive also had a couple of separate stool candida tests that all have come back negative.
Im not sure if its dysbosis from bacteria or fungal or both.
I do know for a fact that carbs feed them and send me off the deep end.
I do know I have a history of HEAVY atbx use, and a history of herding bad on any anti fungal agent I have tried and I have tried a bunch.
And thats what I base my diagnosis on,self diagnosed.
Negative tests on Sibo,h pylori,gastric emptying,celiac ,and on and on.
I did three fecal transplants with no herxing and also no results bad or good.
Havent a clue why I could do fecal transplants but can't tolerate probiotics.
I do know how severe I herx so just maybe Im not eliminating toxins well enough,don't know.
Im at a loss,worn out beyond belief but will keep trying.
Hopefully I can continue with the CSM and see what happens.
I will admitt to having not trying one thing and that is fermented foods to repopulate my gut because most of what I read on yeast says not to eat fermented food although there is a lot of contradicting info on that.
If I get no where with the CSM I will try fermented foods next.
Not much to lose and maybe some clues to gain as to whats going on.Be nice to catch a break.
Thanks for all input,God bless.
Posted by TF (Member # 14183) on :
Joe, just be sure you try only one thing at a time.
That is very important. You can be tempted to try two things at a time. I have been. But, it just adds confusion.
Hopefully the CSM is going to give you good results. Keep us posted!
Posted by S13 (Member # 42830) on :
Yes like TF says, only one thing at a time.
However if fermented foods are on your wishlist, you may want to start preparing already. Kefir is quick to make, but sauerkraut takes 3-4weeks of fermentation. So if you want to make it yourself, dont wait too long.
Im not sure why there are stories that candida feeds on fermented foods. Perhaps they mean some kind of yeast fermentation (wine beer etc) and not lactic acid fermentation.
So you have a negative stool test on candida. So what makes you think you have it in the first place? Dont make the mistake to chase ghosts. A bad reaction to diflucan is not a confirmation you have candida.
Yes its very strange you can tolerate fecal transplants. Since they are just pure highly concentrated probiotics for your gut. The only thing that could make it different is the way of administration (oral vs rectal) and the possible addition of prebiotics to the probiotics. I assume you did the transplant correctly? Before the transplant: no fiber and sugar for 1-2weeks, a couple of days of water fasting, and a water enema to clear out old fecal matter. After the transplant start feeding the bacteria with good fiber (prebiotics). And i presume you werent taking any killers (including abx and herbals), right? Because why even bother with trying to establish new colonies if you are killing them off immediately...
Posted by shoeless joe (Member # 45835) on :
No worries ,I barely can do one thing at a time
I don't put much stock in the stool test
All I can do is try to put the clues together.
Heavy history of atbx, react to carbs, Herx on all antifungals.
I herx on things that are anti fungal and not anti bacterial.
Could it be bacterial too or parasites,could be but the anti fungal herxes are a big give away to me.
Never being able to get through these herxes is a clue that maybe I need to bind toxins more,hence the CSM.
What can I do but go by what my body is telling me,I would give anything to know whats wrong,wouldn't we all.
No,I did not prep as well as you mentioned for the fecal transplants.
What I did read is you need to do FMTs for a stretch of days for the flora to take hold,I only did three days.Not ruling a run of FMTs either.
Guess you have to keep trying.
One clue I do have I can't quite figure out. One of the best days I had in years health wise was the day after I did an upper GI barium test.
I felt so much better the next day,I told my girl I would drink barium everyday.
I don't know what the barium did,maybe absorbed toxins,don't know but I definitely had more energy and a clear head.
I thought maybe the barium not being food was feeding any bad flora,tried fasting after that but that didn't work.
Charcoal and clay haven't done anything for me either except back me up.
Its morning three heads still a little clearer.If I have another BM then I will do a third dose of CSM today.
Thanks for all the help
Posted by shoeless joe (Member # 45835) on :
wheeeew,neuro as hell.
Its day 4 and Im skipping the CSM dose today.
Going to let this clear out and start again,not going to dig myself in a hole.
Just a guess but Im hoping this neuro stuff is due to the detox.
Ive read that happens, have to be patient. We will see.
Unsettlling,was hoping to just start clearing out.
Anyone else have some sort of detox herxhiemer on CSM?
Posted by S13 (Member # 42830) on :
Sorry to hear that. Please go slow and dont force it.
I know i couldnt take it. The first day i took it was great, but then symptoms quickly spiraled out of control.
Posted by Marnie (Member # 773) on :
"Resistant" yeast infection...show your doc this abstract (go to the link, highlight, cut and paste it into a MS word file and print it out for your LLMD):
Fluconazole assists berberine to kill fluconazole-resistant Candida albicans.