So last night I was lying in bed (usually takes me a few hours before I fall asleep) and as I tried to relax my body and fall asleep, I started having like terrible
Jerks. Like my hands would jerk, my legs, and then at times my entire body would just like volt, almost as if I was electrocuted. Now I've had body jerks/twitching
as one of my symptoms for a while now but last night was soooo much more intense, almost as if I was going to have a seizure. My lips and eyes were always twitching uncontrollably and it was simply frightening.
Now I haven't experienced a seizure yet from my lyme (knock on wood) but this all feels like seizure like movements so im
wondering if these are signs that I may be at this stage and it may actually happen. last time I brought something like this up to my LLMD I see now all she
did was up my dose of gabapentin at night. But I'm obviously not getting any benefit or relief from these violent jerks.
Do you have any suggestions? Do you think it means I may have a seizure eventually and should call my LLMD again
before I see her? I just don't know what to do I HATE this symptom it is so frightening especially since last night.. My jerks were way more violent then they usually are.
Posted by Lymetoo (Member # 743) on :
Sounds like myoclonus .. I'm not sure what they do for that. I'll Google it for you.
So it's more of a symptom rather then a disorder, such as seizures ?
Posted by Lymetoo (Member # 743) on :
Yes, I know we've had plenty of people here with the problem. How long has this been going on?
Have you tried magnesium?
Posted by Semia (Member # 46837) on :
It's been really bad the last couple weeks. But I'm also seeing an awful LLMD now like barely on any treatment. So im not surprised im getting worse but I don't see my new LLMD Till mid January and this is a very very scary symptom for me.
And yea I take mag Malate 4 times daily. Shud I take more?
Posted by Lymetoo (Member # 743) on :
Are you sure the malate is not making it worse? Maybe try another form of mag to see?
Mag glycinate might be worth a try.
Posted by Keebler (Member # 12673) on :
Topic: Best way to control limbic seizures / overactivity?
Actually, for anyone with hyper-stimulation of the nervous system. It's all in the same neighborhood.
Many LINKS - hope something here will (gently) ring some bells for you. Lots to consider so just take it one step at a time. -
Posted by Lymetoo (Member # 743) on :
Someone told me that glutamate caused myoclonus for them:
- L-glutamine (taken to help gut lining) lowered seizure threshold and made way for a few clobbering events for me, even tiny doses. I was a guinea pig on that one but I figured it out, finally.
Caused that very "vibrating" feeling all the time, too. That is such an awful sensation. -