So my LLMD finally realized I need more aggressive treatment then oral abx. So she took my blood work again to try and receive a more positive test result so that insurance can approve IV treatment.
She mentioned to me that IV treatment is a process as far as getting it approved. For those of you that had IV.. how long did it take you to get approved?
Also, right now I am on tindamax, rifampin, and doxy. I feel my bartonella is acting out in crazy ways. Even with my klonopin. my anxiety feels out of control. Has anyone experienced this with bartonella? Like an increase in anxiety while treating it?
Apparently rifampin hits bartonella hard so Im hoping this is all part of the die off and won't last too long =( I also think rifampin is messing with my hormones.. my insomnia is terrible and I'm gaining weight. Sorry, I know I'm all over the place but if anyone has any suggestions or has
experienced what I'm going through id greatly appreciate any input. Id mainly like to know how long it takes to get an IV approved!
Posted by poppy (Member # 5355) on :
Another perhaps more important question is how long insurance will pay for IV. Many people have been cut off after a month, although they needed more time. If that happens, then plan b needs to be in place. Will you continue to pay for it yourself? And if so,then ways to make it less expensive should be researched. A lot of us have had to do this and so lymenet will be a resource for you, as well as local support groups.
Posted by Semia (Member # 46837) on :
Oh wow yea I didn't even think of that.
How much does it cost if insurance cuts you off?
Posted by Lymetoo (Member # 743) on :
Tons.... They will usually cut you off after 30 days.
Posted by Semia (Member # 46837) on :
What the heck ! Then how do all of you guys get treated longer???