Treated with multiple (and layered) abx and anti-protozoan meds for 4 years (Lyme and Babesia positive through both Quest and IGeneX). Never pulsed any of those treatments.
Been on a 15 month hiatus from all of that jazz. It's been a little rocky lately, however, and it's leading me to ask if there are any of you out there who after breaking from more traditional rounds of antibiotics decided to retreat with some of the more targeted antibiotics that have been revealed through drug library searches by the likes of say Johns Hopkins, Stanford, etc.?
In the past, I was a patient of THE LLMD in NY, and am aware that this doctor has been implementing some of these 'newer' antibiotic protocols.
Any information on your exoerience(s) with these 'newer' protocols...be it Daptomycin, more structured pulsing methods, etc.- would be most appreciated.
Thanks so much, kind ladies and gents, Told you...
[ 01-03-2016, 04:30 PM: Message edited by: Told you I was sick ]
Posted by Tincup (Member # 5829) on :
I've not seen or heard from anyone doing the drugs on the JH list that weren't already doing them. They have not been tested on humans, only in the lab.
I did hear from a doctor that they were "expensive" and that's about it.
Can you go back to your doc?
Posted by nomoremuscles (Member # 9560) on :
I have seen patients of Dr. H posting about this therapy, or a version of it.
None of the patients whose accounts I have read have made progress, a few seemed to have gotten worse.
Posted by unsure445 (Member # 15962) on :
Up
Posted by MDub (Member # 45937) on :
quote:Originally posted by nomoremuscles: I have seen patients of Dr. H posting about this therapy, or a version of it.
None of the patients whose accounts I have read have made progress, a few seemed to have gotten worse.
I saw the poster who posted (and then got spooked and retracted) a very detailed description of his therapy with Dap + Ceftriaxone.
I saw a lot of problems with how that treatment was administered...to summarize, the way he was taking the abx (alternating drugs each week, 4 days on, 3 days off), one agent was out of his system before the next was introduced.
That was contradictory to Zhang's research...in-vitro eradication was achieved with combination therapy, not alternating monotherapy. Dap is not effective against Bb by itself except in ridiculously high doses...the drugs need to be in the system together.
I'm sure his LLMD had a reason for proceeding in that manner (probably HERX prevention), but I would not generalize his experience to people in general.
Another poster was on 14 days of Dap + Cef at an ID clinic...after 10 days she stopped posting. I always hope when that happens, it's because they are "cured" and no longer need support.
I have heard about other patients improving dramatically on combination therapies including Dap, but I cannot substantiate those stories at this time.
If you are seeing an LLMD, ask him/her about these therapies. I think a lot of people aren't talking about these treatments because of the mainstream medical community's outlook on long-term antibiotic therapy.
Either that, or they are getting cured and leaving the forums.
Good luck.
Posted by desertwind (Member # 25256) on :
I tried the Dap. along with pulsing cell wall, intracell and cyst buster. Made no progress with Dap./this protocol.
I am at close to 100% but relapse so we are trying to find something that might work. Been at this for 12 years and made most progress with Doxy, Zythro, Mepron, Tindamax. Treated for Lyme, Babs, Bart, Q-Fever and Tularemia as I tested positive for all of these TBI's.
Now I pulse Amoxicillin x3/ week and Doxy one week on and on the off week take Tindamx. Rinse and repeat. I am a patient of Dr. H./John F.
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