A good synopsis of some of those problems is offered up by Lorraine Johnson of ILADS. You may wish to give it a look.
Posted by Keebler (Member # 12673) on :
- Indeed, paleogal, long term antibiotics (with excellent support methods for liver / adrenals, etc.) have helped many.
Some find it may take 2-4 years of combined treatments, with rotations, etc. Some find it takes less or more time.
That article, that poorly designed study is medical malpractice and a huge disservice to humanity in the assumptions it perpetuates. IMO.
As for treatment, there are various approaches. No one size fits all - as no two people have exactly the same mix of tick borne / stealth infections / for the same amount of time with the same ramifications.
Treatment must have flexibility yet also stick to some basic principles of being assertive / direct against key infections with proper support methods.
Just be sure that you have an ILADS educated LLMD or LL ND / naturopathic doctor (or similar) to guide you.
Even if other methods are used either as support / complementary or a whole different approach,
it's vital they understand the science of lyme and all that goes with it as best learned through ILADS physician training and conferences. -
Posted by Andie333 (Member # 7370) on :
I have been on and off long term antibiotics for a number of years. I manage to only get to a point, and then I start going backwards.
Trying a new, homeopathic route now.
Holding out hope.
Posted by Keebler (Member # 12673) on :
LYMEPOLICYWONK: Chronic Lyme European PLEASE Trial—You know it’s spin when treatment “success” is called “failure”?
Lorraine Johnson, JD, MBA - LymeDisease.org - March 30, 2016
Excerpt:
. . . How should we define success? These authors were comparing 2 weeks of IV Rocephin against 2 weeks of IV Rocephin followed by oral antibiotics.
They found no difference between those who received additional oral antibiotics and those who did not. So maybe the oral antibiotics aren’t adding much or maybe they were the wrong oral antibiotics or maybe they weren’t given long enough. Who knows?
The fact is that all of the patient groups received IV Rocephin and all groups had clinically important improvement. Shouldn’t that be the headline? . . .
[Full article with excellent thoughts at link above.] -
Posted by Keebler (Member # 12673) on :
Herbal Safety considerations & reference books; etc.
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
knowing which methods offer assertive & direct impact, which are only support and which are both. And when to use what, how to combine, & when to step back.
You can compare and contrast many approaches with links to articles, books, methods . . . -
[ 04-05-2016, 03:15 AM: Message edited by: Keebler ]
Posted by Jordana (Member # 45305) on :
In the news cycle the release of this study and coverage by the mainstream press coincided with bills being submitted in several upper New England states.
Interesting timing eh.
Posted by duncan (Member # 46242) on :
Check out Marques and Company's new "study" on Lyme patients improving over time to actually becoming better in some cases than the average healthy individual. Outrageous and laden with innuendo.
Keep in mind that the new IDSA Guidelines are due for release this October...
I think it not a stretch to suggest studies such as these may be liberally referenced.
Posted by paleogal (Member # 45991) on :
Oooh thanks for posting the Lyme policy wonk piece, Keebler - I hadn't come across that yet in my google searching. I will have to start following that blog.
Posted by Keebler (Member # 12673) on :
- With any news, it's always good to check Lyme Policy Wonk at that site as she will likely have already written about it.
Such an excellent site / people. Also good to search Pamela Weintraub now and then. She's an excellent & skilled LL journalist / writer.
These studies that our beloved corporate medical system keeps pumping out, are just based on treating Lyme with standard weak antibiotics that cannot kill persister cells, whether it be biofilms or cyst form. That's why placebo study will of course show that doxy and other antibiotics don't work!
I decided to chime in on the recent Forbes article because the author can't even get the statistics right. Salzberg, the professor who wrote the article studied biostatistics at "Johns Hopkins University." The University responsible for putting out information on Lyme persister cells. His ignorance is inexcusable!
Big pharma just keeps using the same standard tactics to get people to believe the hogwash. The media I guess, just keeps dishing it out too...
