This is topic what is "treat lyme and associated diseases" online group? i dont see anything about in forum Medical Questions at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/134008

Posted by lpkayak (Member # 5230) on :
 
I dont see anthing about ilads

DR R of WA is involved

My brain doesnt worknow...can someone help...is this good or just someone taking money they say they have newest lyme info but i dont see any of old docs

**edited name of LLMD**

[ 05-07-2016, 04:07 PM: Message edited by: Lymetoo ]
 
Posted by Keebler (Member # 12673) on :
 
-
ILADS is an educational website, not an online discussion group. They are more of an educational website, although they do have a "connect" tab upper right of their homepage:

www.ilads.org

ILADS

INTERNATIONAL LYME & ASSOCIATED DISEASES SOCIETY


This is likely the organization [also of top character and detail] that you are looking for regarding an online discussion group:

www.lymedisease.org

LYME DISEASE.org


https://www.lymedisease.org/get-involved/take-action/find-your-state-group/

FIND YOUR STATE GROUP - online discussion / connection
-
 
Posted by Keebler (Member # 12673) on :
 
-
Going back to the name you mentioned -

Oh, I see why this is confusing - while the term, itself, does describe what they do and makes sense to state it that way, it mirrors part of ILADS' name to let people know it's more than jus lyme.

I do not see an online discussion tab here, though.

They may have something like that if you contact them directly, though, perhaps a more private discussion board? Or maybe you are looking for their Q & A Webinar?

These are very knowledgeable doctors, indeed - an MD & ND and they are ILADS educated / minded - yet not sure about their current treatment focus. I'm not "endorsing them" yet would certainly put them in a top category of considerations to study before you make a choice.

I have spoken to both by phone on different occasion but could never manage getting to see them for budget and travel reasons. That was many years ago. I have since read much of their work and am very impressed and also thankful they make so much available online.

As to making a decision if one or the other / or both are going to be the best fit for your needs:

See what kind of lectures / presentations online you can find of theirs to also inform your decision. They have many free articles at their site, etc.

Talk to the lyme support groups in Washington state and also around the Seattle and Belleview areas. More people there will have seen them in person.

Also call Bastyr Naturopathic University CLINIC (in the Seattle area) and see if you can talk to someone there. Ask first, who they would recommend in private practice. They may well offer the name of the ND here. That's how I found her many years ago. See if she is still on their referral list.


http://www.treatlyme.net/

Treat Lyme & Associated Diseases


http://www.treatlyme.net/lyme-webinar-marty-ross-md/

Q & A Webinar

-

[ 05-07-2016, 01:47 PM: Message edited by: Keebler ]
 
Posted by Keebler (Member # 12673) on :
 
-
You likely already have Dr. H's book "Why Can't We Get Better?" --- he has new one due out in Oct. 2016 called: How Can I Get Better?

- and all of Buhner's on TBD (he has a new edition out, too)

You might also want to see the two new books out by different ILADS LLMD before making any major monetary decisions about a treatment shift.

http://www.lymediseaseassociation.org/index.php/lda-news-a-updates/1455-publication-of-new-liegner-lyme-book

http://www.amazon.com/Crucible-Chronic-Lyme-Disease-Associated/dp/1503587371

Dr L: In the Crucible of Chronic Lyme

&

http://www.lymedoctor.com/

Dr. S has a new one out soon, follow up to excellent "The Lyme Disease Solution"
-

[ 05-07-2016, 03:26 PM: Message edited by: Keebler ]
 
Posted by lpkayak (Member # 5230) on :
 
Thanks keebler. Im not really looking for a doc. I think my lyme is pretty much under control as much as it can be. I know mold is an issue and have been trying to treat it for a year

On mold sites i saw ppl saying that place was good but nothing. of it was familiar to me so i wanted to check with ppl i trust. Thanks
 


Powered by UBB.classic™ 6.7.3