I've been treating, Bart, babesia, and lyme with various antibiotics for roughly a year now. Long story short is my LLMD seems to be a little dates and refers to a manual and has during the duration of treatment. She doesn't seem up to date with new practices or meds. She is at the point where she is open to prescribing me meds that I want or that I research. I'm just loosing a little faith in her.
My concern is my lingering symptoms are, night sweats, headache on the top of my head and a unusual falling feeling or sudden tippy feeling that is very intense but only lasts a couple of seconds. The sweats seem to come every couple of weeks and I just can't kick them. I attribute these symptoms to babesia.
I have been on atovaquone (mepron) 10 months and currently have upped my dose the last couple of months. I'm worried that I have developed resistance. I'm at the point where I would like to get off meds and try something new and give my liver a break. I'm a little lost of what to try, who to contact or what to do. I have read a lot about Bactrim DS. But again that is another antibiotic. Anyone have any vision of what I should do here????
Posted by foxy loxy (Member # 47053) on :
You could try cryptolepis (a strong African herb) from unfuserve and coArtem... this combo is great for babesia...
Posted by hopingandpraying (Member # 9256) on :
I think you should consider switching LLMDs. I did send you several names back in March. Perhaps adding a LL Naturopathic doctor into the mix might help.
You could also contact the MN Lyme Support Groups for suggestions:
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posted by Jordana (Member # 45305) on :
foxy loxy -- will infuserve ship crytpolepis without a prescription?
Posted by goose (Member # 45410) on :
Hopingandpraying,
Just FYI the names you sent me back in March one is out of practice (bottom one) and the others currently work in the same office and I'm seeing the top female one you listed. The other, I have been told not to waste my time.
Thanks for you help though I appreciate it
immensely. I will attempt to find a naturopathic
doctor somehow. Thanks again for your help!
Posted by Catgirl (Member # 31149) on :
You can also try artemisinin.
Posted by ohioperson22 (Member # 47837) on :
Maybe you can have your doctor order you a Babesia FISH test from IGeneX to see if you still have it.
Posted by goose (Member # 45410) on :
Sorry I should have elaborated a little here. I'm
taking atovaquone, azithromycin, and artemisinin (5days a week).
I recently just took a brucella test that came
back negative as well. I just started
artemisinin in March and maybe that is hitting it
making me herx for now more so every couple
weeks? My symptoms just seem to be coming back
though instead of going away.
So hard to say because my LLMD didn't
even know to add artimisinin, I had to tell her
about it. I'm just a little worried about taking
Atovaquone as long as I have with potential
damage to the liver.
Posted by hopingandpraying (Member # 9256) on :
Thanks for the update (I did not know) - will update my list for MN.
Posted by TF (Member # 14183) on :
It really sounds like you would benefit by finding a new doctor. Are you willing to come east for better care? We have a lot more lyme here so our lyme docs get a lot more practice and develop a lot more expertise. We also have a lot more lyme doctors.
You would only have to come in person once every 3 months. You can do telephone appointments the other months.
When you are telling the doc what you want to try, it is time to try a new doc!