We thought my daughter has vasculitis, but a biopsy is saying that it is not vasculitis, but a type of eczema. (Both LLMD and derm thought otherwise). The derm would like us to try a week of a steroidal cream to see if it helps.
I know steroids in general are not good w/ Lyme/co infections. Has anyone had an experience w/ a topical?
Thanks
Posted by Keebler (Member # 12673) on :
- Ask her LLMD.
I had terrible reaction to a steroid cream on a large patch of what they said was eczema many years ago.
If she is being treated for lyme, the antibiotics might "protect" her but there are cautions by doctors who have written about the "lyme steroid disasters" that caution not even topical steroid creams as they will be absorbed by the body.
And, as likely if she has lyme, the eczema is really lyme or other infection making itself known . . . or even toxicity from the skin being overwhelmed as a detox organ . . . steroid creams are unlikely to be effective.
MYCOPLASMA can also greatly manifest in skin disruptions. I'm just beginning to study that and will try to put the relevant excerpt for you. I think in Buhner's new-ish book on Bartonella and Mycoplasma. - more later -
If you happen to have a LL ND around, you might try to ask them about a good topical that would be both soothing to skin and irritation and also antimicrobial, broad base to cover various infections, including fungal that this could be.
I will post some of thing that help my skin later.
Just because whatever the test determined it to be is what they determine to be autoimmune (hence, the steroids) does not mean it is.
Assuming, of course that she has lyme, etc. and maybe you are not just asking as a side note with your being here for another family member with lyme.
I just know when I tried the hydrocortisone cream on half my neck that already on fire, it just went into forest fire mode.
What really stopped that rash, that time, was doxycycline. It was amazing. Soon after I started on that, the rash disappeared. Of course, little would I know that I'd be getting only a short course of just one Rx when a more complex approach was required. -
Posted by Keebler (Member # 12673) on :
- In the meantime, I find an organic CASTOR OIL to be helpful to calm the current "whatever" that cover the back of my hands and half of my shin.
SHEA BUTTER can also be helpful but I've not found the perfect one.
A GOLDENSEAL salve might work, such as what HerbPharm makes.
CALENDULA, too.
Be very careful of any essential oils such as Tea Tree that they would be very much diluted, otherwise could burn seriously.
more later. -
Posted by Keebler (Member # 12673) on :
- Somewhere in one of the articles by a doctor, it does caution against topicals. But I've not pulled that out of this batch:
Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links. -
Posted by Keebler (Member # 12673) on :
- ALLIMAX cream. It has some good write ups about even being effective against MRSA on the skin.
I've not taken it and have run through all my other options and was inclined to try it with my next month's budget. Just be sure to buy from the most direct mfgr. not a 4th or 5th party so you know it's fresh and has been stored properly.
I must say, when I read this I have great hesitation. There are ingredients in this I would NEVER use, usually. The last half of the ingredients are petrochemicals. I know they did some study and it was high lauded but I'd like to find something better than this.
It also has (wheatgerm oil) and most with lyme who should avoid gluten probably should not have it in their topicals, either.
I know there has to be something better. A LL ND (naturopathic doctor) would know better. I'll still give it more thought.
It may be this could help how until you find something better. -
[ 06-29-2016, 09:24 PM: Message edited by: Keebler ]
Posted by Keebler (Member # 12673) on :
Allimed® Liquid Dropper with Allisure® AC-23 (1oz)
Ingredients: Aqua, allicin liquid. Free of preservatives and additives.
Cost: $130. My eyes cannot be seeing this right ? For one ounce this seems out of line. But, the idea . . . find a concentrated one, pure, and then add one drop to a good shea butter cream or castor oil, perhaps.
Alternative:
Many health oriented food markets carry this line.
- check ingredient safety on all kinds of personal care and household products -
Posted by Keebler (Member # 12673) on :
- Backing up, even if "eczema" there can be causes for that, perhaps chronic infections but also exposure to chemicals. For instance:
Look out for: methyllisothiazolinone - it's even in some "natural" soaps, even Seventh Generation. Best to avoid. When I switched to Better Life "Dish It Out" instead, a rash on my hands go much better.
Also switched out my Avalon bath gel that had harsh ingredients I had not been aware of with ACURE (mint is fairly calm scent. Their unscented smells awful, though).
A MYSTERIOUS RASH ON A WOMAN'S HANDS & LIPS STUMPED SPECIALISTS
The Washington Post - Health & Science - July 28, 2014
- By Sandra G. Boodman -
Posted by Keebler (Member # 12673) on :
- I can't recall if the skin detail about mycoplasma came from this book or from Taylor's article below. But I am sure that just last week I made this connection. Yet, so many systemic chronic infections can have skin manifestations. I have to stop now, though.