Not sure if this is a redicously stupid question, but here goes:
I'm not new to Lyme and coi-infections (treated for years despite equivocal lab results). I am not currently on any treatments.
There is one weird symptom that has returned, and left all my western-docs stumped. I have severe pain around my one eye and upper teeth. The ENT scoped the area and cultured it- nothing wrong.
Next, I get this odd vibrating sensation in my teeth and back of my neck/ top of spine. The more vibrating I feel, the worse the facial pain becomes. When the ENT sprayed lidocaine, the pain was not as bad- maybe neurological problem?
Are these symptoms totally unusual from anyone reading this??? ALL recent standard lab work lab work and cultures are normal.
(breaking up the post for easier reading for many here)
[ 10-09-2016, 07:54 PM: Message edited by: Robin123 ]
Posted by MichaelTampa (Member # 24868) on :
I might guess neurological in nature.
Posted by WPinVA (Member # 33581) on :
Consider seeing a biological dentist. Perhaps there's a problem with a root canal or a cavitation or something else. Whole Body Dentistry is a good book. Do you have any metal in your mouth? Root canals? Have you had teeth pulled?
Not a stupid question at all!
Posted by bluelyme (Member # 47170) on :
Have you tested for toxoplasmosis or proto? It loves the eyes ...nerve pain in teeth helped by little sting with bee venom on gums ...
Posted by Overwhelmed (Member # 38499) on :
Never any teeth pulled- - few fillings but not with that Metal material. Was treated about 7 years ago for toxoplasmosis (tx seemed successful).
If I found a biological dentist, how would he/ she assess?
So, do I understand that maybe my sympathies are not Lyme or co-infection related??!?
Posted by Lymetoo (Member # 743) on :
Probably not directly related.
Posted by mlg (Member # 35383) on :
Proto. My worse eye problems and some teach problems. Dr C has guideline on it which are posted here
Posted by bluelyme (Member # 47170) on :
My understanding is that toxo /proto doesnt ever really go away?! Treat that with antiparasiticals and eye and tooth symptoms will be effected ..
Dr C has a good pdf on tx options ...is that the dr c mlg was saying ?
(editing out doctor's name)
[ 10-10-2016, 01:25 AM: Message edited by: Robin123 ]
Posted by Overwhelmed (Member # 38499) on :
Sorry for this question, but what's proto? Thanks 🙏
Posted by Keebler (Member # 12673) on :
[this type is excellent for those with lyme as there is no sudden twisting of the spine or neck - which should never be done with some who deals with lyme where the spine might be infected / inflammed / swollen]
Some are trained to do in the mouth, way back in the back manipulation. That really helped me with ear issues. It might also help with eye pain. -
Posted by Keebler (Member # 12673) on :
- Inflammation, from whatever all is going on could be connected. A diet free of gluten, dairy and corn might be of help to reduce inflammation.
Avoiding any and all foods that may be genetically modified is also important to help address inflammation reactions.
As you try to figure all this out, I'd start by addressing inflammation. Turmeric is one place to begin. -
Posted by Keebler (Member # 12673) on :
- Sensations of vibration could also be due to irritated nerves (for various reasons) yet that are also deficient in magnesium.
"Vibrations" sound like they could be spasms with overactive nerve firing, so be sure your life is as free of "excito-toxins" as possible.
Topic: MAGNESIUM - Informational Links set -
Posted by Keebler (Member # 12673) on :
- A vaccine connection? Hope you've not had any recent vaccines, yet, something to consider. Brussels just posted this about face issues after vaccine:
CRANIAL NERVES -
Posted by Robin123 (Member # 9197) on :
Yep, I've gone through similar symptoms you're mentioning. I even stumped the top dental school - they couldn't find anything wrong, even though I was experiencing severe dental and face pain.
I told my chiropractor and he did some cranial work on my skull for 15 minutes, and all the pain went down.
I get this about every year or so. This pain recently built up and I saw a cranialsacral specialist who just did skull work, which ended the pain. She spent a half hour working with me.
I was told we can call around for who is trained in the Upledger technique for biomechanical craniosacral work. One session does it for me.
Our head bones move - when they crunch a bit, we can get nerve symptoms across the teeth that spread up the face to the eye. It's very painful when it happens.
One more comment - isn't it strange that I would stump the top dental school here? Here it is that skull bones can press on nerves that affect the face and teeth!
Wa-a-a-a-y too much separation of medical fields!
My head had been hit by a car's side window before this happened and they never asked whether I'd experienced any head trauma, even.
The school interviewed people to train their incoming dental students. I was chosen to be one of the interviewees since I was such a delicate case there! Not for dental, but for everything else - lol -
so I spoke about the craniosacral work and I sure hope they're using it to educate everyone there!!
Not a stupid question at all - I'd call it an overlooked question, as in medical fields have not yet been educated about it. It's just more of this crazy experience - like we get to discover all the ways that medical people aren't educated!
It's like stepping on medical minefields - we get to be the ones to have to find out what's really going on.
I feel good about having been interviewed for training purposes - best to participate in solutions to problems.
Posted by Overwhelmed (Member # 38499) on :
So Robin123, what was the actual diagnosis?
Posted by Robin123 (Member # 9197) on :
Skull bone impaction of nerves leading to my face - for me, this meant needing cranial work.
As I said above, there is a severe disconnect between medical disciplines. Like this one, craniosacral work, is hands-on work and they are trained to do it.
I know we're all different, so all we can say here is what has worked for us, and then people can check it out as desired.
Posted by Keebler (Member # 12673) on :
- There may need not be a "diagnosis" in terms of a disease - or even an on-going condition - if the cranial bones need adjustment.
They can really get scrunched. The plates of the skull bones can get a little bit pressured even just by our posture and activities.
I would certainly suggest seeing a DO, doctor of osteopathy who does Upledger style cranial sacral. See what they can assess. That would be the best first move, I think. -
Posted by Overwhelmed (Member # 38499) on :
I am going to see a DN this month (doctor of naturopathy) and in her office is a DC (chiropractor) and LAC (acupuncturist). Just not sure 🤔 what info they need from me in order to adjust or fix my body.?
I mean, do I say, "maybe my skull needs fixing?" I'm a little nervous. Everyone's input is helpful, and i completely know that we are all so different:)
(breaking up the paragraph for easier reading for many here)
[ 10-10-2016, 01:26 AM: Message edited by: Robin123 ]
Posted by hopingandpraying (Member # 9256) on :
Your question is not at all stupid and the advice you have received here is very good. It always helps others when people share their personal experiences and recommendations, rather than having to blindly search for something or someone!
Perhaps the NY Lyme Support Groups might have members experiencing the same problems you are or know of someone to suggest to you who can help:
Interesting! I recently saw a specialized PT for facial pain/ headaches and he emphasized how stiff I am due to posture and being tense. But the gentle excercises he taught me even worsened the symptoms.
Posted by Robin123 (Member # 9197) on :
No stupid questions here, just questions...
I think you may need to see someone who does the biomechanical craniosacral work, whether done by a knowledgeable DO or someone trained in the Upledger way.
I did a lot of PT too - some helped, some hurt. I think our muscles to be able to handle it, as in have adequate magnesium before starting any PT.
Also, I stretched out in a swimming pool - it worked for me, to stretch tight muscles.
Posted by dbpei (Member # 33574) on :
Overwhelmed, I also have some pain and vibrations around my left eye and teeth/jawbone. (I have sizzling, burning and other symptoms as well). ENTs and dentists (biological, traditional, and oral surgeons) cannot find anything that would be causing this.
All of my metal fillings have been safely replaced and I had a dental implant that was perfectly intact removed because I was so convinced it had to be causing these symptoms. they did not change after it was removed.
I have been seeing a DO (doctor of osteopathy) for over a year, who has been trying to help me. He is a very experienced doctor, who tells me this all stems from compression and contracture of my spine in different locations that has gradually affected my neck and skull, worsening over the years. I hope he is right. I often experience some relief following his visits.
Posted by Brussels (Member # 13480) on :
I think craniosacral can solve quite a lot of problems. Don't be afraid, everyone has something to be adjusted through craniosacral massage.
Another thing that can help (in case you have no root infection, teeth infections, dead teeth, sinuses infections, mold allergies...) are neural therapy injections. Very easy, fast and the effect can be sometimes amazing.
I am doing that for my facial pain, now, after suffering for a couple of years of problems with my teeth. The bad teeth are gone, all the metals are gone, cavitations were treated, but there is a single spot that does not heal. So I'm trying neural therapy. Let's see....
Neural therapy helps the body correct false impulses, wrong energy flow. It is amazing what it can be accomplished sometimes.
Scars, infections, accidents, any place can become a problem (they call that an interference field) and block energy. Neural therapy can help unblock these blocked channels. It is an old technique used in German speaking countries.
Another thing that can help is acupuncture.
Posted by Overwhelmed (Member # 38499) on :
This is all so interesting- but I wonder if these issues are not symptoms, how are they related to Lyme?
Posted by bluelyme (Member # 47170) on :
My cartilage is badly effected.lyme loves collegen ..and the stuff inbetween bones is just that ...the tmg nerve may be at play it was mentioned in the lyme summit ...
bartonella loves nerves ..so in these systemic infections all modalities of relief must be considered and utilized, even if it only offers temporary symptom relief ...its a reprive ..
![[Frown]](frown.gif)