My grandson's college roommate has been in the hospital four days for reduced output of kidneys. They thought he was dehydrated, but so far, all tests have shown nothing. I have very little info about other symptoms except he has had some pain.
Since nothing is showing up, I was wondering if any of the Tick-Borne infections could be involved. That is not something the doctors here would tend to consider, or if they did, they'd use the wrong labs and have negative test results.
Or have I become obsessed with the possibility of TBDs when doctors can't find answers?
Posted by Tincup (Member # 5829) on :
cbb,
You are right to look at Lyme and TBD's especially when regular docs can't find answers. You have a gift of being able to look with an educated eye at various possibilities. Use it as you have been. It serves you well.
And yes, kidneys can be affected. Lots of literature on it. Quick search pulled this one up, but there are many more.
*Standard lab tests are only designed to detect exposure to Borrelia burgdorferi and those tests miss up to 75% of people who have the Borrelia burgdorferi strain of Lyme disease.
Follow your gut feelings. And thank you for caring!
Posted by cbb (Member # 788) on :
Wow, Tincup. What a quick response and great info. I checked a couple reliable books and decided to come here to the experts with my question. Obviously that was a good decision.
I should have added that this family lives in a lovely wooded neighborhood with lots of deer roaming around. It's also adjacent to Fort Jackson where they found Lyme disease about 1992. Signs on the fort say "Lyme disease area, take precautions...."
This young man could have other symptoms that he hasn't mentioned. It's not unusual for a 21 year old young man not to complain. (older men, too) Also, the doctors may not be asking all the right questions.
Thank you for the information and thank you for all the kind words!!! You and several others here have been the inspiration to keep me going when it's so frustrating and depressing.
One sad example was a wonderful attorney here diagnosed with ALS. A mutual friend asked me for info and they had him tested for Lyme. His test was positive, but his "ALS specialist" in Charlotte, NC said "We won't worry about the Lyme disease. We'll just deal with the ALS." I was crushed when I heard this and, of course, he didn't survive.
Thank you for all you do!!!
Posted by Tincup (Member # 5829) on :
Aren't you sweet. Thanks for the kind words.
And yes, it is so so sad when the ducks don't even try. Turns my stomach actually when I hear this is STILL going on.
And you are so right with those not complaining. Recently had a fellow about the same age as yours mentioned above who shared 2-3 symptoms. When given a list of possible symptoms there were about 15 of them he checked off.
If doctors don't ask questions, don't even learn enough to KNOW the right questions, it is a dis-service to all.
But, I know you. You won't give up when someone is in need. So glad you are there making a difference.
Posted by cbb (Member # 788) on :
Thanks for the additional information. I appreciate your concern and your help!!
Posted by bluelyme (Member # 47170) on :
Yes they are now mosquito born and std ...it hit my kidneys first .I blame bartonella and it may have been a cat
Posted by cbb (Member # 788) on :
Thanks, blue. I've read that the mosquito can carry the LD spirochete, but haven't seen where it can transmit it. Seems to me that if the spirochete can go in through the mouth parts, it could certainly come out when the mosquito bites.
The mosquitos are a problem here. It has been worse in our area since the terrible flooding we had last year, so that is definitely another possibility.
Sorry it hit your kidneys first. Hope the problem has improved for you. I've been following some of the veterinary research done on Bartonella at North Carolina State. I think the seriousness of Bart has not been acknowledged by most.
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