Sometimes I wonder if Lyme is even an issue for me these days because these symptoms I experience are weird. Several months ago I started experiencing severe anxiety/panic/fight and flight mode plus neuropathy and tingling all over my body. I saw a doctor who said I have oxalate crystals and wouldn't be able to get any better unless I detox them out.
He said to take a bunch of trace minerals which were supposed to help with that or use magnesium oil to pull out the crystals from your skin. That was a disaster along with other things he prescribed. I was reacting severely and ended up even more anxious, with even more pain, and my sense of smell got worse, my sensitivity to chemicals also worsened, my skin sensitivity and heat intolerance also worsened. And taking in any kind of supplement makes me very reactive, so I only take a few. And I became more sensitive to food that I shouldn't be if we're just talking about Lyme.
What helped me with desensitizing my sense of smell was to get rid of all toxic household products and replace them with natural ones and body products too. And acupuncture helped with that too and with the anxiety (though it is still there).
I recently started a Lyme treatment with Chinese herbs (Lightning Pearls by Classical Pearls) because I was afraid maybe Lyme got worse. I have a hard time understanding if I am reacting to it or not because food also makes me reactive, the food that never did before cause me any trouble, the food that is supposed to be good for you! But probably I am reacting to these things due to salicylates and oxalates.
After I eat, my neuropathy gets worse, the tingling too, and I feel inflamed, my nostrils are inflamed, and I just feel anxious and depressed. I want to just cry (and sometimes I do). I don't know how it got to this point, but I was on antibiotics for a while and then some prescription drugs for other issues and was popping OTC pain meds every time I had pain. Did not help that my diet wasn't 100% clean and the fact that I have MTHFR and other gene mutations.
Tomorrow I will find out if my mast cells are activated, if I have a lot of histamines, and what kind of food sensitivities I may have with an integrative clinic. If the issue is salicylates and/or oxalates, which will mean I'll have to be on a rather restricted diet for a while. I also bought new body products which are salicylate free, just to make sure I am not putting more toxins into my body even though the other products I have are natural.
Sorry for my rant. I just feel so frustrated and lost. Not sure if Lyme is bad or if I am dealing with other issues!
Ps: I've no idea what to eat. There's so many contradictions in each source about food.
Posted by Lymetoo (Member # 743) on :
It's bad. I totally understand. Salicylates ABSOLUTELY make me anxious and depressed. When I am off of them, I feel pretty good!!!
You MUST reduce oxalates SLOWLY or you will pay BIG TIME.
There is no test for salicylates that I am aware of. It's trial and error.
Stay away from "natural" products.. most are loaded with sals.
keep us posted on your progress!!!
Posted by tepidauutmn (Member # 49476) on :
Oh, dear, you mean organic vegetables and meats have sals???
Posted by Lymetoo (Member # 743) on :
Organic vegetables have more salicylates than conventional .. oh great!!
Ugh seriously...
Posted by Badtick (Member # 9794) on :
Get your B6 levels checked.
How did the Dr. determine you have oxalate crystals?
Posted by Catgirl (Member # 31149) on :
Have you tried HistDao? You might also consider NAET (acupuncture). It's the price of an acupuncture apt so it replaces your regular acupuncture. Also, you might want to learn how to muscle test (youtubes). Then you will know what you can eat and take.
Eating high oxalates can mess up just about anything and everything.
Posted by tepidauutmn (Member # 49476) on :
Badtick, good idea. The doctor checked my blood through the microscope. That was in the end of September.
Catgirl, thanks a lot. I just saw a naturopath who does AAT and we're going about it slowly, since I am so reactive to everything. But for starters she gave me liposomal Vitamin C to stabilize mast cell activation and histamines. I'll be seeing her weekly, it's similar to NAET.
Posted by Badtick (Member # 9794) on :
Neuropathy worse after eating was what clued me into my b6 toxicity. I'm homo for MTHFR
Some of us don't metabolize b6 effectively. Especially those with C677 defect. Here is a test. Eat 3 bananas....
Posted by tepidauutmn (Member # 49476) on :
Badtick, hahaha 1 banana gives me abdominal issues already LOL.
I am also homo for mthfr with the C677 defect like you.
How do you deal with that?
Posted by Badtick (Member # 9794) on :
I'm supplementing with methylfolate, b12, glutathione and the usual liver support stuff.
Posted by Catgirl (Member # 31149) on :
Tepid, you might try methyl protect (good for MTHFR):