Hi I am new here so please bear with me. I am a 48 year old female...I do not ever recall being bit by a tick except back in 1980's I had a tick stuck on my neck for a week..I never had a bullseye and back then I don't even think they tested for Lyme...anyway fast forward I have always had issues with fatigue on and off and several years ago I had some issue with muscle spasms..went away. 2 years ago I was seeing a nurse practitioner for a chronic UTI ..she also specializes in Interstitial Cystitis and Lyme....she did an ISPOT lyme test and here were my results...
Result indicates significant T cell IFN-γ secretion upon stimulation by Lyme-specific antigens. This suggests past or current Borrelia burgdorferi infection. Potential reasons for a positive response: • Patient has active infection that may be acute or chronic. • Patient had a B. burgdorferi infection that is no longer active but host memory T cell response to Lyme antigens persists. iSpotTM Parameter IFN-gamma Secretion (DbpA, OspC, p100, VlsE-1) (Lyme) LDT Whole blood IFN- γ Secretion (Unstimulated) Whole blood
Result Positive (26 SFU) Normal SFU 3 Optimal >400SFU
I am not sure what this means...but she had said I was positive for Lyme....I wasn't so concerned with it at the time b/c the bigger issue was the recurrent UTI...now that I have that in check I think I may be having some lyme issues...
Recently I went to Mexico with my family and the last 2 days our party of 4 got sick ,....we did not have Ice or drink the water...One person was extremely sick for 2 weeks with fever and diareah their stool actually tested positive for a common food poisoning bacteria...my stool sample was negative...and I really only had some Acid reflux and nausea...I think because I take a really good probiotic everyday this helped me. Anyway...I decided to do a all natural parasite detox.from dr. Omar Armin..... Its a 90 day protocol I only bought the 30 days and after a week in I started experiencing Muscle twitching /spasms mostly in the arms and legs...but my left upper eye lid is also twitching on and off .... at first I thought it might be a symptom from the herbs..but they are very low doses ...I do take magnesium regularly and did even before this...so I know its not that..and I drink over 34 oz of water a day (because of my bladder). so I am not dehydrated. I notice the twitching is worse when I am at rest.
So what I am hoping you all can help me with is :
1. What should I make of those test results...is my level really high b/c I think it looks low...but am I reading that correctly?
2. Is it possible that the herbs are hitting the lyme and that is why I am experiencing this twitching/spasms?
Any other information or advise you can offer I welcome.
here is info to the detox and ingredients of the herbs incase you need to see them:its 3 bottles Freedome Bottle 2 pills each morning : Garlic, Olive Leaf Extract, Citrus Seed Extract, Goldenseal, Aloe Vera, Pomegranate, Oregano Leaf, Clove Bud, Black Walnut Hull, Peppermint Leaf, Black Cumin Seed, Watermelon Seed, Gentian Root, Wormwood Bark, Hyssop Leaf, Cramp Bark, Thyme Leaf, Fennel Seed, Pumpkin Seed, Caprylic Acid, Rosemary, Papaya, Rangoon Creeper
Cleanse Bottle 2 pills each afternoon : Psyllium Seed Husk, Atlantic Kelp, Corn Silk, Fo-Ti, Chinese Rhubarb Root, Peppermint Leaf, Black Cumin Seed, Cinnamon Bark, Fennel Seed, Ginger Root, Orange Peel Extract, Clove Bulb, Cascara Sagrada, Slippery Elm Bark.
Restore Bottle 2 pills each night : Molasses, Carob, Chinese Rhubarb Root, Sage, Thyme Leaf, Ginger Root, Clove Bulb, Cayenne Fruit, Rosemary Leaf, Alfalfa leaf, Licorice Root, Chamomile, Grapefruit Seed Extract, Echinacea, Atlantic Kelp, Chicory, Corn Silk, Fennel Seed, Peppermint Leaf, Safflower.
Posted by Catgirl (Member # 31149) on :
Welcome nnj!
I had the twitching too, even eye lid which was so annoying. Twitching and some spasms can be from lyme (looks like you have it) but those herbs are primarily for parasites so they are likely the cause. Parasites are a huge issue for lyme patients and very often over looked. There is one well known lyme doc who treats all of his patients for parasites first.
Good for you for starting treatment your own. You might also look into Stephen Harrod Buhner's books on lyme and co infections. He is the master of herbs for lyme and company. Lyme typically comes with co infections that must be addressed as well.
Another thing to consider is that lyme patients are typically low in minerals. A magnesium deficiency could cause twitching as well. You might try some mag. Also selenium and zinc are usually low for lyme patients.
Catgirl thanks so much for you reply....I should have mentioned I take 300mg of Magnesium every day and did even before any of this...I upped it to 400 mg but I have diarrhea now...I even tried adding in a calcium pill 350 mg...I also take 2000/IU D3 everyday.
When you say "I had the twitching too..even eye lid" do you mean during a detox?>>> Like I am wondering if the herbs are killing stuff so the lyme is being killed too, or...are you saying it's just lyme symptoms all of a sudden popping out ? Will it stop?
The detox I bought the 30 days worth but the protocol is really 90 days...so if I do ok I am going to keep going...I have been taking Calcium Benntonite Clay baths as well to help pull the toxins.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for MD.
I know you are new to Lymenet, but please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do that, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":