My husband was recently diagnosed with Lymes Disease after a year of having symptoms. He recently had a lumbar puncture and the doctor wants to start him on a 4 week IV antibiotic treatment. What can I do to prepare for the treatment? Are there any vitamins he should start taking? Is there a new diet I should get him started on?
Posted by bluelyme (Member # 47170) on :
Sorry no body replyed ...4 weeks of abx is usually all the insurance will cover but try to keep the picc and do them 2 months after all symptoms are resolved ...see burrascanos guidlines ...nystatin powder ,100 billion probiotics and vit d vit b and iodine are good places to start ..consider detox tegime if herxing is bad iv glutithione and low dose iv vit c has helped me ...
pirouette on healing well had a really good post on iv abx with port access ..i do mine at home with the help of infuserve america and a nurse or two i visit at their office ...keep us posted
Posted by Lymetoo (Member # 743) on :
Welcome ! .. BE SURE he takes probiotics .. a good brand. I would get some Florastor from Walgreen's or CVS. Also a good probo from Custom Probiotics. Buy online.
Sounds like he is likely NOT being treated by an LLMD. He will need one, so begin your search now.
You can post in Seeking a Doctor to find one nearby.
He also needs to be tested for coinfections.
Posted by tickbite666 (Member # 43399) on :
Trouble is 4 weeks of IV Rocephin won't be enough, and it does nothing to treat Babs and Bart which most all Lyme patients are infected with.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for PA, MD & CT.
Here are some quotes from old posts about NJ:
"There are NO good LLMD's in NJ. NJ is a wasteland of bad docs. I can tell you from years of experience, unless you go with an established doc (of which there are only a few on the east coast) you will get undertreated and continue to relapse.
PLEASE TAKE MY ADVICE. NJ is a bad place for ticks and a bad place for tick doctors."
"The LLMDs in NJ are not very good based on patients' experiences. People start with them then end up going to see other LLMDs out-of-state."
"Over the years, the folks in New Jersey have said that the best Lyme doctors are not there."
"I strongly suggest that you be willing to travel outside of New Jersey to get good treatment."
"There are Lyme doctors in the area you have named, but I don't recommend any of them. To get a good Lyme specialist, you will have to be willing to travel. At least half of all Lyme patients go out of state for their care."
Your husband needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
The top LLMD, Dr. H, has written books titled, "Why Can't I Get Better?" and a new one, "How Can I Get Better?". They are an excellent source of information.
Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.