how many have been to a hospital and have had a hard time once they new you had lyme..in some states they will not
take you seriously when they see it on your report..they believe it does not exist because of the Idsa..my advice to
anyone who has lyme to never go to a hospital alone..if you are alone you are toast! you need a second and third person
to take your side..also if your primary does not believe in lyme do not use his name when you get to the hospital just say
you have no doctor.. the reason for this is the hospital will call back to your primary and if he thinks you dont have
lyme the hospital wont check anything and you will be sent home or a psychiatrist will appear at your bedside..this is the
truth! there should be support groups that can cover each other and meet at a hospital to help educate doctors in the er
that think lyme is a virus..so we can get the care we need...thanks for listening!
Posted by Keebler (Member # 12673) on :
- Hospitals just do not treat lyme. That's pretty much the rule of thumb. They just don't.
Anyone who thinks they can "educate" any doctor inside a hospital at the time they require treatment will likely be very disappointed.
With very rare exception for the "new" and acute case, 99.9% of doctors in hospitals are not at all educated, equipped or "allowed" to treat lyme. It's vital that patients understand this.
A hospital is no place to try to get treatment for lyme. Sadly.
They will go by the IDSA model and require a two tier positive test before they will think about it. And that kind of testing won't be done in an emergency setting.
They first do the ELISA, which is a terrible test for lyme. But, even if that might come back positive, they don't rely on that but then do a lumbar puncture which is even worse for lyme test reliability.
Do not look to a hospital to treat lyme. -
Posted by overlyme (Member # 43455) on :
not to treat lyme but a side effect to antibiotics
or a bad herx of the heart or brain..anything like
shortness of breath..intercranial hypertension or
rashes...that kind of stuff..
Posted by SickSam (Member # 45330) on :
I've been admitted several times. Some hospitals are better, others are worse. None have been helpful, except when I went into rhabdo, the IV fluids might have saved my life. The first ER tried to send me home, the second discovered my rhabdo.
Posted by Brussels (Member # 13480) on :
Here in Switzerland, hospitals do offer 2 to 3 weeks of iv Rocephin (my daughter was supposed to get that).
But that is basically all.
After, they offered cortisone.
I refused both treatments.
Short term antibiotics will never heal a chronic case (she was chronic).
When I got sure her problem was lyme, I just said, thank you and left, refusing the treatment.
I'd rather go to private practitioners with long term experience with lyme treatment.
that is what I did.
And I also treated her home, on my own. The quality you can get doing it all on your own, in my opinion, is already much better than in hospitals :
at home, you get your supplements, omega 3, vit D, Bs, Cs, homeopathics, probiotics, bee products, herbs, while in hospitals you get only drugs, some pain killers, and you got to excuse yourself for taking supplements (or do it hidden from the personnel).