Ever since I started treated my lyme and babs, currently on doxy and ABABS I have been extremely dizzy/off balance and headaches daily so I decided this morning to go up the er and get checked. I felt like my walking was so bad that I got scared. After four hours, labs, xrays, ct of the head, etc., the doctor told me to ditch the lyme meds and go home. Feeling so lousy and disappointed.
Posted by MissVictoria (Member # 45232) on :
I'm sorry you're going through this, and that you had a bad experience at the ER.
Do you have vertigo?
If you have vertigo, I recommend going to a chiropractor who is trained in Epley Maneuver.
Vestibular Rehab also helps with dizziness and balance issues.
Magnesium malate supplements can help with headaches, and they're also great for muscle health and pain relief.
Feel better <3
Posted by alliebridge (Member # 9103) on :
That’s terrible Linda! So sorry you had to deal with that on top of feeling so unwell. Posted by randibear (Member # 11290) on :
typical er. that's why many people avoid er and hospital unless they're bleeding out.....
Posted by Keebler (Member # 12673) on :
- The Epley Maneuver can be excellent yet only works on one type of vertigo. If when you move your head you get a "hit" or drop of vertigo, that's a sign that is might be that type: positional. It's detailed in last link of the links set.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled LINKS SET -
Posted by Keebler (Member # 12673) on :
- Sadly, you are not the first for this kind of thing to happen to - many of us have been there and figured out we'd better learn how to tend to ourselves as much as possible.
Sorry you went through that though, hope you can find out what to do / not do that will help with symptoms.
If you told the ER staff your LLMDs name, please call your LLMDs office and let them know that occurred and they can be prepared if there are any repercussions for the controversiy in treatment but, first , of course, also to get their guidance.
Also get instruction from them for how to take care of yourself at times like this so you don't have to subject yourself to the kinds of abuse in the ER.
If it's not broken or bleeding or not a life threatening concern, there is usually zero help found in an ER.
They will not ackhnowledge lyme and could even file a complaint with the medical board against doctors who treat lyme. LLMDs often are called to defend their treatments because of the politics in this.
Magnesium would be the best first aid measure to learn about - and liver support for herx.
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posted by Lymetoo (Member # 743) on :
So sorry to hear. I hope you feel better very very soon.
Posted by Bartenderbonnie (Member # 49177) on :
So sorry lindadanis
You wouldn't believe this happens until it happens to you. It's beyond human comprehension that sick patients get neglected and disrespected in this way.
It's disgusting and criminal.
All medical providers NEED to be trained and educated in Tick Borne Infections. Everyone WILL encounter a tick in their life. We are all in this together, truly.
Posted by lindadanis (Member # 51204) on :
thank you for all your replies. I did call my llmd yesterday and told her about my visit to the er. She took me off all meds, including doxy and ababs and said I haven't felt good since treatment which just started in February and that she wanted to wait and see what my rheumatoid doctor has to say tomorrow about the elevated SED rate and RH fACTOR. she said she doesn't now what is wrong with me and that this dizziness/rocking of the boat feeling was not due to lyme or babs and that I should see an ENT doctor as well. Any input here on these suggestions.
Posted by map1131 (Member # 2022) on :
Sorry to say but I don't believe you are seeing a true LLMD.
It is very rare for any Lyme & co person taking antibiotics to feel ANY better in 3 mths. In fact they usually feel worse.
A LLMD putting a patient on that specialist merry-go-round sounds very off to me.
Pam
Posted by Keebler (Member # 12673) on :
- Ditto to Pam's note above. I've said this before - and so have others in various previous threads of yours. I'd bet all in my bank account right now that this doctor is not at all a true LLMD.
Sad to tell you but it's the truth, it's not at all reasonable to expect to feel better at this point. Please watch UNDER OUR SKIN.
Now, there are some things that might help, of course. Liver support, etc. yet it's still not what I think you might be imagining or that the doctor who is not really working for you thinks.
I also don't think the treatments you've been on have been that comprehensive and what you've described of any kind plan going forward in past posts has sounded very, very off. It does not sound like it would be effective.
When patients get the right treatment, there is some awareness that they are at least on the right path even if it's a bumpy ride. The right treatment also comes with proper support methods, though. -
Posted by alliebridge (Member # 9103) on :
Unsure why she pulled you off all meds. It’s puzzling.
This doc is a true LLMD (Linda and I see the same doctor). She treated me successfully for Lyme and coinfections.
Posted by Keebler (Member # 12673) on :
- alliebridge,
Good to know. There must be some variables here that get in the way.
Sometimes, though, a good LLMD changes the way they practice if there is outside pressure on them. There can be a drastic change in their approach.
This has happened and has been very perplexing to some who had gone to someone with good recommendation and yet then that doctor was not at all as thorough as before.
it would be important to know if this might be the case. The area lyme support groups might be best to ask this question.
Still, there are likely variables in individuals' cases. -
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