posted
I had many tickbites 15 years ago when I was a kid/teenager. Grew up near the wetlands by JFK airport in Queens (and have constantly been told there are no lyme infected ticks there). Been getting sicker and sicker ever since. Hormonal issues, joint pain, and now neurological issues. No one can figure out why I am so sick, but they load me up with medications to treat the symptoms.
I went to an infectious disease specialist who ran the ELISA and Western Blot several times -- and said I do not have Lyme.
Only after taking Levaquin, a broad based antibiotic, and having an incredibly severe reaction to it, did one doctor bring up the possibility that I am herxing b/c of Lyme.
I need a list of the best LLMDs in NYC. Would much appreciate your help.
As a side note -- do any take insurance? I have 100% out of network coverage. I heard the fees charged are ridiculous. I prefer not to go bankrupt from this --- though I already spent thousands on my health with no resolution.
Posts: 2 | From NYC | Registered: Aug 2012
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Pm sent
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I hope others can send you specific names.
And SOME LLMDs do take insurance but insurance often just won't cover lyme treatment beyond a month. Still, some may and if you "fly under the radar" with certain prescriptions, you may be able to get some coverage at least.
Connect with your area lyme support groups to find those who may have the same insurance company as do you. This will be very valuable information.
Do NOT tell your insurance company up front the diagnosis. Do NOT tell a pharmacist, either. Or your employer. Reasons why are posted in the "Why ILADS" thread at your other post in the medical forum.
In answer to your insurance question, it's just not so much that fees can be high (well, they are, in ratio to most folks' income) but their costs reflect their operating costs due to being shut out by the insurance industry that does not usually want to cover lyme.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic