LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Seeking a Doctor » seeking LLMD on Long Island (central)

 - UBBFriend: Email this page to someone!    
Author Topic: seeking LLMD on Long Island (central)
nicedream815
Junior Member
Member # 15026

Icon 1 posted      Profile for nicedream815     Send New Private Message       Edit/Delete Post   Reply With Quote 
hello,
i just found out about this website and decided to join. i live on Long Island, moved here when I was 10 (im 25 now). at 11, i was diagnosed with Lyme disease, and all I recall is taking antibiotics for it. a few years ago, i started working outside more often, and decided to get a blood test just to make sure I didn't get Lyme again (i hadnt found any ticks on me). the doctor seemed really confused about the results, and had a colleague look at them. the colleague said, hesistantly, that it shows I do have Lyme but it's probably from when I was 11. Last Fall, after finding a few ticks on me again (no rash), I got another blood test after several weeks of feeling nauseous and achy. again, the doctor (another one) said that all they could tell me was that I have Lyme in my system and that it might be from when I was 11. i took an antibiotic regiment anyway, but im left hopeless and baffled. How can anyone tell if you got Lyme disease AGAIN?! Since last Fall, I have noticed that my hands tremble when I hold them up and try to keep them still. one doctor suggested I might have hypoglycemia, but im getting paranoid that it might be Lyme that I have contracted in the past few years that noone has been able to detect, and thus it has gone untreated and gone to my nervous system. One of the teachers I knew in high school recently died from Lyme... he was always very shaky and trembling...and this makes me very nervous.

here are my results (from a January blood test)

Western Blot IgG
93kD - positive
66kD - positive
58kD - positive
45kD - negative
41kD - positive
39kD - positive
30kD - negative
28kD - positive
23kD - negative
18kD - positive


Western Blot IgM
41KDa - negative
39KDa - negative
23KDa - negative


Any help would be very welcome! Thank you.

Posts: 6 | From long island | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
mbroderick
Frequent Contributor (1K+ posts)
Member # 5220

Icon 1 posted      Profile for mbroderick     Send New Private Message       Edit/Delete Post   Reply With Quote 
There are no LLMD's (Lyme Literate MD's) on Long Island, as far as I know. Check the Lyme Disease Assoc. website below. It allows you to search for docs by entering your zip code.

Lyme Disease Association Doctor Referral page:
http://www.lymediseaseassociation.org/Doctor_Referrals.html

Posts: 2097 | From PA | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
nicedream815
Junior Member
Member # 15026

Icon 1 posted      Profile for nicedream815     Send New Private Message       Edit/Delete Post   Reply With Quote 
so the doctors that come up in that search are not LLMDs?
Posts: 6 | From long island | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Vezzy
Junior Member
Member # 15295

Icon 1 posted      Profile for Vezzy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hullo,

I can't really say too much about the test results you posted (since I don't know enough yet about what the various bands mean, except that some have more weight than others when it comes to Lyme). But I did send a PM concerning LLMDs. [Smile]

-Vezzy

Posts: 6 | From Long Island, NY | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.