posted
I am seeking a doctor to who is familiar with Lyme disease in my area.
I am not sure this is what I have but what I have matches the symptoms.
My current doctor is taking me down a path that am not happy with and I seem no closer to a diagnosis.
I would like to find a doc more willing to look at and try to understand all my symptoms.
Current doc is very reliant on prescriptions and how my symptoms respond to prescriptions.
I am interested in getting a diagnosis and focusing on getting better rather than treating every symptom with a pill.
Symptoms started 5 years ago.
Some of them are the common ones:
-arthritis like pain in hands, arms and upper back (this started 4 months ago)
-fatigue that comes and goes (5 years)
- tightness feeling in chest/heart that is worst at night...( 4 years)
- shooting leg pains that hurt so bad my lower back starts aching.
This is almost always accompanied by swollen glands in my lower body... have had this on and off for 5 years.
- locked up jaw and sore throat... experienced this for the first time a couple months ago
- rashes on hands with no apparent cause... like my immune systems is just easily aggravated (occurred couple time in past two years)
- urinary tract infections (have not had this one in awhile)
- general problems with digestion and upset stomach for 5 years(have been able to get this under control by increasing fiber and eating yogurt everyday)
- feel toxic sometimes... no other way to describe it (have been managing this with changes to my diet)
- very susceptible to dehydration
- Sensitive to temperature in the extreme... I am almost always cold feeling but seem to be sweating all the time.
A referral to a more opened minded doctor would be helpful as well as information.
There was a girl in my hometown (here in Ohio) who was diagnosed with Lyme disease.
I know it is not unheard of here... just not something commonly affecting people.
[ 08. July 2008, 03:29 PM: Message edited by: chris n ]
Posts: 1 | From ohio | Registered: Jul 2008
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check my profile for ohio llmds; sending you a private message ************************
WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you! ******************************
we recommend 6-12 WEEKS of doxycycline antibiotics; 2 months symptom FREE before stopping antibiotics.
*********************
Also, if you are needing a LLMD, LYME LITERATE MD, please post on board in SEEKING DR. forum. Go to FORUM HOME, right corner click, and then chose seeking dr.
We ask that ALL members post in seeking dr. and START THEIR OWN ``NEW'' POSTS vs. adding on to someone else's because we can NOT keep track of who has been answered and who NEEDS to be replied to ok!
Many of you have been sending me a private message asking for llmd names and have NOT posted on the board. I require you to post online because when you show the state and largest cities nearest you; others from YOUR STATE WILL JUMP IN and give you the MOST CURRENT info that they have.
We have nationwide lists do NOT have most current info! We do what we can, but we depend on members to share all updates, deletions, phone nos. not working or changed, etc. with us. Then we let the others know promptly who have lists!
So thank you for starting YOUR OWN POST in seeking dr! We/I will help you as much as possible over there! Betty *******************************************
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. *******************
please go to dr. burrascano's 05 lyme treatment guidelines and print out pages 17-18 ,,, where it talks about dosages for KIDS and adults!!
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1500 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. ***************
I want to make sure we have whoever on our NATIONWIDE LLMD list, which I have also with 12 other folks.
If you call any of the names where we do NOT have complete info, please ask the following and furnish me when you are done so we can add it to our nationwide llmd lists!! THANK YOU!
if you end up calling any above WITHOUT COMPLETE INFO, would you get the following IF possible from them??
we need full name SPECIALTY street addy city, state
phone no. fax no. web site or email if possible
cost per hour for 1st visit cost for followups
do they take insurance? what kind? treat by IV or ORAL?
thanks for helping us add to our drs. of around 300 nationwide who are LLMD! **************************************
we ask that all new members post in SEEKING DR. area and show cities/state in subject line.
please tell us a little about yourself; it helps in directing you the best way we know how! read 1 of top posts, and then answer the questions i've asked ok; WE THANK YOU KB!
also by posting on board, FLORIDA folks reach out and give you the MOST CURRENT INFO that we with nationwide lists just do NOT get promptly!! *********************************************
posted
The only reason Lyme is uncommon in Ohio is because doctors here will not diagnose it not because people don't contract it. I fly to NY to see my Lyme specialist, let me know if you want his number.
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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