Hi everyone, So here's my story. At 20 yrs old, I had a raised, red bullseye rash on my waist. It went away in about a week, so I thought nothing of it. About 6 months later, i woke up one morning in a complete state of fog. My neck was stiff, it seemed like the underlying skin of my head, neck were numb with a dull headache. I was very fatigued, neck creaked and crunched when I move it. As well as my neck being extremely stiff and achey, especially in the back right underneath the skull. Sinus pressure behind eyes and in face. Swollen, painful eyes at night.Plugged right ear and hear a thud sound when I tap my neck. Painful, week and numb legs and arms. I had nausea for about a week, but the rest of the symptoms remained. Saw a few doctors, no one knew what it was. Fast forward 10 years and finally I'm tested positive for lyme. Get 2 weeks doxy, no help. 3 months intraveneous rocefin, still no change. So now I'm 41, it's been over 20 years of me feeling horrible. Last Lyme doctor I saw said the 3 months recefin was enough and that my symptoms couldnt be chronic lyme. Also, the rash appeared back on my waist in the same place about 4 years later. and again went away in about a week.
So, my question is. Does it seem like my symptoms are from lyme and if so, PLEASE, could I get a LLMD reccomendation in NYC area? GREATLY APPRECIATE ANY HELP OR INFO.
Peace and be well. I know how horrible this all can be, believe me! David
Posted by bettyg (Member # 6147) on :
welcome to the board; glad you found us.
As of MIDNIGHT last night, our PRIVATE MESSAGES WERE DISABLED due to ongoing problems, and the administrator took this action.
So at this time, we are in a quandry since we use PMs, private messages, to send this info since it can NOT BE POSTED ONLINE HERE.
Bear with us as we work out the difficulties, but we do have names for that area!
For the time being, you could try this!
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1500 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *****************
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