LymeNet Flash: seeking LLMD on Long Island (central)

This is topic seeking LLMD on Long Island (central) in forum Seeking a Doctor at LymeNet Flash.

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Posted by nicedream815 (Member # 15026) on :

hello,
i just found out about this website and decided to join. i live on Long Island, moved here when I was 10 (im 25 now). at 11, i was diagnosed with Lyme disease, and all I recall is taking antibiotics for it. a few years ago, i started working outside more often, and decided to get a blood test just to make sure I didn't get Lyme again (i hadnt found any ticks on me). the doctor seemed really confused about the results, and had a colleague look at them. the colleague said, hesistantly, that it shows I do have Lyme but it's probably from when I was 11. Last Fall, after finding a few ticks on me again (no rash), I got another blood test after several weeks of feeling nauseous and achy. again, the doctor (another one) said that all they could tell me was that I have Lyme in my system and that it might be from when I was 11. i took an antibiotic regiment anyway, but im left hopeless and baffled. How can anyone tell if you got Lyme disease AGAIN?! Since last Fall, I have noticed that my hands tremble when I hold them up and try to keep them still. one doctor suggested I might have hypoglycemia, but im getting paranoid that it might be Lyme that I have contracted in the past few years that noone has been able to detect, and thus it has gone untreated and gone to my nervous system. One of the teachers I knew in high school recently died from Lyme... he was always very shaky and trembling...and this makes me very nervous.

here are my results (from a January blood test)

Western Blot IgG
93kD - positive
66kD - positive
58kD - positive
45kD - negative
41kD - positive
39kD - positive
30kD - negative
28kD - positive
23kD - negative
18kD - positive

Western Blot IgM
41KDa - negative
39KDa - negative
23KDa - negative

Any help would be very welcome! Thank you.

Posted by mbroderick (Member # 5220) on :

There are no LLMD's (Lyme Literate MD's) on Long Island, as far as I know. Check the Lyme Disease Assoc. website below. It allows you to search for docs by entering your zip code.

Lyme Disease Association Doctor Referral page:
http://www.lymediseaseassociation.org/Doctor_Referrals.html

Posted by nicedream815 (Member # 15026) on :

so the doctors that come up in that search are not LLMDs?

Posted by Vezzy (Member # 15295) on :

Hullo,

I can't really say too much about the test results you posted (since I don't know enough yet about what the various bands mean, except that some have more weight than others when it comes to Lyme). But I did send a PM concerning LLMDs. [Smile]

-Vezzy