LymeNet Flash: Looking for a LLDM Neurologist in NY/NJ

This is topic Looking for a LLDM Neurologist in NY/NJ in forum Seeking a Doctor at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/6413

Posted by Sammy76 (Member # 15518) on :

I've been diagnosed with MS and today diagnosed with Lyme. How do I know it's either or both?

If anyone knows of a LLMD Neurologist please share.

Thanks,
Samanhta

Posted by njlymemom (Member # 15088) on :

Hi Sammy - I replied to one of your other posts regarding Lyme/MS

I was in your shoes

Was misdiagnosed for a long time with MS

I have been trying to find answers my entire adult life

I was diagnosed with lyme about 6 years ago.....I have yet to find a lyme literate neuro....I don't think there is such a doc

I read the response someone gave you on another post.......and it is accurate

I too did not test CDC positive.......but had lyme significant bands that were indeterminant

I new I was dying and gave the abx a try.....improvement was slow but it did happen

I would not have been able to read your post never mind type a response 6 years ago

I am not well....but I am certainly no longer just a shell of a person I was without my abx

Posted by bettyg (Member # 6147) on :

sammy, [group hug]

i'm so sorry; a double whammy!

sending you private message on NJ one .... didn't see any listed w/specialty for NY...

will be in my profile or left side under hello to read ok!

did you get my newbie package; there is 1 or more links in there about lyme/MS. best wishes.

Posted by lymemommy (Member # 12495) on :

sammy and njlymemom,

I sent you both a pm with contact info for a llmd neuro.

If you want me to update you with first hand feedback (after we go see him), let me know.

Take care,
kp

Posted by heatherliveswithlyme (Member # 14890) on :

pmed