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Posted by dirtprincess (Member # 15747) on :
 
I have been trying to find a doctor in San Diego

california. I dont have health insurance and

need to be tested for lyme disease, I was

exposed about 2 years ago, and I have been going

down hill since then, and all doctors that I

have gone to have said they dont know what it is.

Here is my story:

If someone is out there that can help me please

contact me thanks.


I am 25 years old. About 2 years ago, I was

visiting some friends in Washington State, one

night while I was a sleep I was bitten, by some

kind of bug, or spider. When I woke that

morning, I felt the lump it left on my foot,

sore, and aggregating. Within in a few days my

foot around the bite got really swollen and red

and circular, a few days later I came down with

flu like symptoms, as well I hurt my back, my

back was so sore I couldn't even pick up a piece

of paper with out crying. Shortly after this,

all happened I returned to California to see a

doctor because the pain was getting worse. Once

I returned home, the pain overtook my body and I

would lay in fetal position on the floor and

scream. My mom was very worried about me, and

kept talking me back and forth to the E.R.

trying to figure out what was going on. After a

few blood tests, x-rays, MRI's, CT scan, and

exam after exam, with no avail. No doctor I have

seen in two years can seem to come up with an

idea of what is wrong. I have been told that I

have muscular skeletal disease, torn ligament in

my back, pinched sciatic nerve, chronic pain

syndrome, periformis syndrome, fibromyalgia, and

a few other ``bottom of the barrel diagnosis'' as

the doctor puts it. I have now been on bed rest

for 9 months and having to take numerous

painkillers and muscle relaxers just to get a

few hours of sleep. The pain is worse that I

could ever describe, and seems never ending. I

have tried to show all these doctors, the bite

on my foot, and all of them say they do not know

what it is or that it is just a scare that gets

bigger and angry looking, but I cannot help but

feel that it is the cause of all my problems.

Since seeing the doctors and getting no where, I

have began researching disease, syndromes, and

other things to find out on my own what it could

be. I came across a web site the other day of a

hospital in Scottsdale Arizona, who deals with

Lyme disease, since everything I have search

always points back to Lyme, I called. I spoke to

woman there, and who, after I told her what I

have been going through, said that she felt that

it could be Lyme. However, treatment, and travel

are so expensive. Going through all this I have

not been able to hold down a job, nor do I have

the money. Please do not think that I am asking

for money or anything like that I just want

someone to listen to me, give me advice, and

help me in anyway possible. The worst part of

this whole thing is that I am not getting help

because I do not have health insurance, because

I cannot afford it, and like I said I could not

work right now because of the pain. I am stuck

between a rock and a hard spot. To be honest

with you I feel like if I do not get help soon

to figure this out I will die from whatever it

is. I am only 25 I should not feel this way I

should be having the time of my life instead of

watching the world go by from the window. I did

want to mention that with my research I came

across a check list of symptoms for Lyme

disease, and out of the 46 symptoms they listed

I marked off I believe it was 35 or 36 symptoms

that I have. I am writing you to ask if you have

any advice for me, or know of doctor that would


help me, in the situation that I am in right now.
[group hug] [confused]

[ 07. June 2008, 12:27 AM: Message edited by: dirtprincess ]
 
Posted by bettyg (Member # 6147) on :
 
welcome princess, so glad you found us!! [group hug] [kiss]


sending you a private message w/those in your city listed!! pms can be found in my profile and on left side under hello!
*******************************


thanks for the detailed post, but majority of us here are NEURO LYME and can NOT read long, continuous blocks of text like yours; so we SOB; SCROLL ON BY without reading.
************************************

we'll be happy to help you; please break up your post; instructions are below for you.

*********************************

WELCOME, would you like a FREE copy of my newbie package of 120 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?


I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!


also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.


most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!


If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!

**********************

When you post or reply, please break up your solid, continuous block text [Smile]


welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.


please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.


now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.


if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.


then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND


we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. [Frown]
 
Posted by KauaiGoddess (Member # 11782) on :
 
Aloha,

Dr. S.H. practices out of REdwood city california, but sees patients in Mailbu once a month on saturdays and sundays...

pm me if your interested...

He's really great...he's helping me greatly! He's very kind and listens...

also really knowledgable and knows about the drugs and alternatives combined!

sorry to hear your story....glad your here...

just so you know there is a plan in california of some sort

( I was there when I first got sick) that offers to help pay for medical cost for those with low to no income...

they paid for my spinal tap and cat scan...it was truly amazing...

if your interested I'll look up in my file, and see if I can find some contact info...

Lymenet offers so much support and information, you'll be taken care of here....

just a word of advice...

you might want to separate your postings out more so they are easier to read for those with Lyme brain....

Much Love & Hugs~

Fawne

ps I know how you feel on the age thing...I am 22...
 


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