I was diagnosed 1.5 years ago with CFS. I requested a Lyme test and it came back positive (Quest, two bands) 3 weeks ago.
I found a doctor to treat Lyme (on my insurance) and made an appt for next week. Upon further research I found she is an infectious disease doctor, not an LLMD. Though someone with chronic Lyme said she helped her regain her life.
So I had planned on keeping that appt next week and starting her protocol. In the meantime I was going to make an appt with a LLMD for August (first available appt) and then see how I was feeling in August.
Well they called today, there is a cancellation next week and I took it. I have to be honest, I am not sure how I feel about paying $800 for a consultation and then hundreds for the b/w she will run because I've gone doctor to doctor to doctor for 1.5 years without a cure. So I don't want to throw money away. But if she can give me a part of my life back, it'll be worth the money. We do not have any insurance reimbursement so this is a tough amount to swallow. But I'm in my late 30s and need my life back.
So I guess I'll cancel the ID appt and go with the LLMD. WWYD?
Anyone see Dr. LF in NJ? Any other suggestions in northern NJ/NYC?
Posted by amk33 (Member # 13206) on :
That's a hard call. If it doesn't cost you much, you may want to still see what the Infectious Desease doc says. What do you have to lose?
I see Dr. F. I know that it is alot of money, but she does spend alot of time with you on the first appointment.
Unfortunately, there is usually a long wait, because she spends so much time on each patient. Let her know your financial situation, and she may try to work with you.
Good luck!
Posted by Meg (Member # 22) on :
Junegal,
Dr. F in NJ is an excellent LLMD, has been on the Nationwide list for years. I would make the appointment with this Dr first!
To go with the other Dr may be money wasted in the long run. IMHO Posted by jigaram (Member # 15954) on :
I agree. I have heard nothing but rave reviews about Dr. LF
I would have taken my daughter to see her but they won't accept anyone under 18. :-(
Good luck!
Melissa
Posted by Mathias (Member # 5298) on :
This is a little late to help. IMO, Dr. F. is a good doc but there are other good NJ LLMD's that are less expensive. If you get no reimbursement from insurance (i.e. PPO) I would check out someone else first. The consult charge is the real killer w/Dr. F.
Posted by llelnino (Member # 16067) on :
Check your PM's
Posted by madge (Member # 13704) on :
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