I apologize for the sudden post. I was just writing to you regarding lyme disease.
To make my story brief, I believe I got it late May- early June. I saw what I thought was an infected spider bite, which later I found that looked exactly like one of the "bulls-eye" rash that people associate lyme disease with. I also remember around that time I had what I guess you would call "flu-like symptoms." I had a fever (99-101) and muscle aches and sore throat. This all blew over in a couple days. I remember the bite took at least 3 weeks to disappear.
Well a week after, I started getting headaches that just would not go away. First it was due to a sinus infection. I took the antibiotics and helped for a couple days and then the headache came back. I have had this headache for about 3 months now. In addition, my back is starting to ache and find that I get fevers quite randomly, never high. I also seemed to have developed a rash on my back, which at the time I took as heat rash.
Point being, I was wondering if in anyone's opinion, this sounded like lyme disease. I went to my general doctor and got a blood test done, should be coming in by the end of the week, she said. However, I am just so nervous that it may come back as a false-negative because of my previous antibiotic use (amoxicillin, flagyl, and levequin: all taken about a month ago) and the steroid nasal spray I use for my allergies. Besides, all these sites about lyme mentions how inaccurate these tests can be.
I am TERRIFIED that if I don't get diagonsed soon, that I will have further troubles that could be dibilitating in the future. Could anyone please provide any help and advice for me, espcially where I should go get treated properly or to find a LLMD near Austin, TX?
Thank you for your time....it is much appreciated, Christina
Posted by Lymetoo (Member # 743) on :
I will send you info through a PM.
Please realize that the lab your dr used will be very likely to come back false-negative...but COULD come back positive.
At any rate, the bullseye rash is DIAGNOSTIC of Lyme. You have it for sure!!
Too bad you did not get a picture of it. If it comes back, be sure to get a pic. Take one with your face in the pic if you can.
Take one with a ruler next to the rash too.
Posted by Lymetoo (Member # 743) on :
Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
Posted by bettyg (Member # 6147) on :
welcome christina; and glad lymetoo sent you promptly texas names!!
here is some moe info in case i missed you when you became a member ....
Welcome; so glad you found us!!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY! *************************************************************
Also, please be VERY SPECIFIC in subject line what you will be discussing.
Example:
PLEASE show your positive, +/-, and IND numbers from both western blot IGG AND IGM blood tests; do it this way please!
IGM ... do same thing for IGG below IGM *******************************************
18 + 41 +/- 78 IND
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results! -----------------------------------------------------------------------------------
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
see my newbie package info; click on link at bottom of my package. @ http://tinyurl.com/58eyou ****************************************
Posted by msalilea (Member # 17459) on :
I probably did this wrong, if so I apologize. seeking a Dr in Austin Tx
Closest large cities: San Antonio, Houston, Dallas/FT Worth
I posted this info in the new posters thread. may be of help here too -------------------------------------------
copied and pasted:
Icon 1 posted 24 September, 2008 03:32 PM Profile for msalilea Send New Private Message Edit/Delete Post Reply With Quote Hi New Here
Referred by some nice people @ Celiac.com
Hope I do this right, not too exp with chat rooms.& am not fairing so well. looking for a dr.
---------------------------------------------
I have basically been a mystery case for the past 16 years, the Dr.s seem to guess sometimes.
1. is this for yourself or CHILD, WHAT AGE? important!!
I am interested in info for myself, I am 28 F. Grew up in California, but have traveled the country quite a bit. Currently in Austin Tx.
2. what symptoms are you having?
Joint pain, fatigue, muscle pain, poor sleep, facial twitches, weakness, dizziness, it's a long list it continues.... DX with migraine headaches, tmj, sle lupus, celiac sprue, fibromyalgia,IBS, colitis
3. do you have/did have BULLS-EYE RASH?
never noticed the rash but have had a tick bite.and am an outdoors person.
4. what lyme tests have you had done??
not sure at this point I believe one of my Rhuematologists did run a test about 10 years ago.
ELISA, WESTERN BLOT IGM AND IGG and WHAT LAB performed them???
not sure in the past, right now I do have a IgG result in front of me for something else
Thanks so much!!!!
[hi]
Posted by bettyg (Member # 6147) on :
ms, welcome
i know new boards are hard to get used to at the beginning. for your info, this would have been better as a NEW POST, that is found in those SMALL BLACK/WHITE BOXES at top/bottom.
ms, check your profile for llmd names i'm sending ************************************
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
![[Smile]](smile.gif)
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)