I am writing for my fiance. He has not been diagnosed with Lymes, but has been suffering with an undiagnosed illness for about 7 years. He does have memory of a strange bite lesion on his inner thigh about the time of the initial symptoms. The dermatologist at the time even took pictures of it because she thought it was a Brown Recluse spider bite.? Around the same time he developed abdominal muscle spasms and recurrent diarrhea. Even went to a dentist for possible TMJ. Doctors including internal med, neurologists, gastrointerologists, etc eventually labeled it as IBD. He was scoped upper and lower. He has progressed to daily muscle spasms of varying muscle groups for varying amounts of time (sometimes weeks the same muscle). His diagnosis "Benign fasiculations". He continues to have IBD symptoms. He has had EMGs, MRIs, CTs of his brain and abdomen. The only note in a CT was possible enlarged spleen...this was not changed on second scan. We insisted on a hematologist who said no big deal. He developed heart palpatations about 2 years ago. Cardiologist said pericarditis due to a virus. It did eventually subside with CoQ10. He also about 2 years ago developed severe testicular pain. We spent New Years Eve in the ER so he could get a testicular ultrasound...(of course also negative). The testicular pain now subsiding, but now chronic bladder pain sometimes radiating into the urethra. Very debilatating pain (like IC pain). Urologist scoped and scanned...(also negative). They suspect prostatitis? Christmas 2 years ago he had his appendix removed due to abdominal pain (biopsy revealed normal appendix). He is only 33 years old. Very active in shape. He has been to a nutritionist, acupuncturist, etc. He lives in chronic pain and stress of when this mystery illness will finally take him. He has been tested for lymes 7 years ago when the muscle spasms first started. Negative. I am now seeing that test could possibly be a false negative. We would really like to get a second opinion from a Lymes specialist. Please email me ASAP with a doctors information in Los Angeles/ North Hollywood area...of course we are willing to travel to get him relief...Or at least some answers. Thank you, Rilea
Posted by mbroderick (Member # 5220) on :
Information sent. Check your private messages by clicking on the flashing envelope or 'my profile' above. Posted by bettyg (Member # 6147) on :
welcome; so glad you found us!!
check YOUR PROFILE for names also i'm sending.
please break up your entire solid block text into SHORT PARAGRAPHS and triple spacing between each paragrah. instructions are below; thanks!
Welcome; so glad you found us!!
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY! *************************************************************
Also, please be VERY SPECIFIC in subject line what you will be discussing.
Example:
PLEASE show your positive, +/-, and IND numbers from both western blot IGG AND IGM blood tests; do it this way please!
IGM ... do same thing for IGG below IGM *******************************************
18 + 41 +/- 78 IND
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy.
LYMETOO'S DR. C'S EXPLANATION OF WESTERN BLOT TESTING!
PRINT THIS OFF the full explanation, and then CIRCLE the numbers that coincide with your positives, IND! That will explain your no. results! -----------------------------------------------------------------------------------
also, please see below, TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
see my newbie package info; click on link at bottom of my package. @ http://tinyurl.com/58eyou ****************************************
Posted by jblral (Member # 8836) on :
Recommend you join the CaliforniaLyme on-line support group:
![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)