I have just completed 6 months of Lyme treatment with indefinite months remaining. My LLMD is in New York State, and he wants me to see a Neurologist but I want one who is LL too!!!! I'm tired of trying to "sell" lyme to people. I live in the Scranton PA area. I have heard there might be some LLNeuros in the Philladelphia area. Do you know of any??? I am trying to stay in state and in my ins network, Geisinger.
Posted by bettyg (Member # 6147) on :
welcome! i checked my llmd list; NONE shown as neurologists!!
hopefully, penn. members will stop and share their expertse. if not, try the bottom link of penn yahoo group shown at bottom of my post ok!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks! *************** please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
Posted by dfalcone (Member # 19035) on :
Thank you... good information. I'll check it out.
Thank you also for the info on not being able to handle large quantities of print... I can't stand it... I muddle through, but had no idea it could be lyme related.
Have had lyme apparently my entire adult life... 30 years. 2 bites... one 10 years ago, too. That's when my lyme went kooky. Diagnosed last July... just beginning my 7th month on oral abx and mepron.
Posted by Meg (Member # 22) on :
d--Also you can check the Support Groups for the State, link is in the leaves, upper left on this page.
Posted by Getting Better (Member # 8919) on :
It's hard for me to believe there's such a thing as a lyme literate neurologist . . .
geez, see how cynical this disease has made me <blush>
or, realistic
We had the BEST neurologists in the world look at our daughter. Johns Hopkins, Mayo Clinic, UCSD, UCLA, Harvard. Who found out it was Lyme? My high school friend, who is the family doc in a small clinic.
![[Smile]](smile.gif)
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.