Hello, I am wondering if anyone knows of a Lyme Disease Specialist in New York City. My husband has not been diagnosed with Lyme, but I strongly suspect that he has it. He suddenly became sick one night in late October (flu-like symptoms) and they have not gone away. He has EXTREME fatigue (he had to immediately stop working because he was doing manual labor), feels weak and drained, has sore joints (especially in the knees), dizziness, shortness of breath and nausea with exertion (even walking up stairs), and headaches. We have been to almost every type of specialist there is and no-one can give us an answer. Some of the doctors say he is fine and there is nothing wrong but there is definitely something wrong!! He has had many tests done including echo-stress test, chest x-ray, breathing tests, MRI of the brain, and many blood tests. All came out normal. He has been tested twice for Lyme and they came out negative both times. PLEASE HELP!!!!!
Posted by bettyg (Member # 6147) on :
welcome dono~! check your profile for NYC names
please break up your solid block text into short paragraphs for us neuro folks who can NOT read or comprehend what you typed above. we'd like to be able to help you, but we have to scroll on by, sob, as is big thanks; see my guidelines below for editing this ok!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
sorry, link takes you to END vs. beginning, so just use UP ARROW and go to the TOP for detailed info! thanks! *************** please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
Posted by Fordace (Member # 14874) on :
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.