LymeNet Flash: Looking for Lyme MD in NH

This is topic Looking for Lyme MD in NH in forum Seeking a Doctor at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/2/8463

Posted by rebecky (Member # 19251) on :

Hi, I'm a new poster. I'm pretty sure I have some kind of lyme infection.

I was just diagnosed with gastroparesis with no known source. I fall asleep at work.

The soles of my feet ache (and I have a sit down job), I have had beck pain for 2 weeks and have had frequent headaches.

I am trying to get in with an Infectious Disease doctor.

My uncle was recently diagnosed as well.

I feel so sick and run down, I need someone to help.

Everyone just laughs at me when I tell them what I think.

But I have done a lot of research. Any help would be appreciated.

[ 02-26-2009, 07:29 AM: Message edited by: rebecky ]

Posted by tdtid (Member # 10276) on :

I am from New Hampshire and am sending you a private message.

Cathy

Posted by bettyg (Member # 6147) on :

see your profile at top for PM w/NH names [Smile]

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WELCOME BECKY!

DO NOT GO TO INFECTIOUS DR!! they undertreat up to max of 3 wks. only and then you become chronic, which they do NOT believe exists!!

please break up your post into short paragraphs for us neuro folks who can not read or comprehend what you wrote. see guidelines below on editing .... big thanks!

Welcome; i'm so glad you found us!! You've come to the right place for education and support!

Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @

http://www.ilads.org/lyme_disease/treatment_guidelines.html

Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf

this link, making the most of your LLMD visit, may help you also.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005

please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you!

http://tinyurl.com/Bettyg-NEWBIE-PACKAGE

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please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber
print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.

Betty's POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.

please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.

now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.

NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.

IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""

[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox

then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND

we thank you for helping us; [Wink]

otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, like this -
http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename
and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
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Posted by 22dreams (Member # 17846) on :

I'm glad you found us Rebecky!

quote:
Originally posted by rebecky:
I was just diagnosed with gastroparesis with no known source.

Palsy of the gut is common among lyme patients.

quote:
The soles of my feet ache [/QB]

Sounds like it could be Bartonella.

BTW: I'm sure you've gleaned from your research, that most infectious disease doctors are NOT the mds to see if you suspect lyme. Many lyme px have been put through the ringer by ID docs.

I'll PM you the information that I have in case it's at all different from what others provide.

Hang in there.....

Posted by Siciliano (Member # 15920) on :

Hi, Rebecky, so happy to see you are in NH like

me [Smile]

I have the best llmd--will send you

a private message with info. Help is on the way!! [Smile]