Help Please...Willing to travel from midcoast Maine to coastal New Hampshire to see a Doc,Thanks! I am 46 female who is active outdoors, hiking, gardener kayaking etc..
Bit by ticks several times, latest one 8/08. Lived in Seacoast New Hampshire for 14 years(lots of ticks).
For the past month I have severe joint pain, started in one knee migrated to other, hips, wrists and migrating shin pain.
Difficulty walking at first, had to concentrate on moving my legs.Headaches and foggy brain. I have a laundry list of other symptoms that I have had over the past several months.
orthopedic guy,(lyme test negative) referred me to Rheumatologist(appointment not until June 11th...can't wait that long for fear I won't be able to work through the pain!)
I have been on .50mg Doxy for two weeks(one more week to go) 600mg ibuprofin and although i can walk easier the pain is horrible some days. Struggling daily to move my joints!
[ 03-02-2009, 01:22 PM: Message edited by: PC110 ]
Posted by bettyg (Member # 6147) on :
welcome pc!! check your profile at top for private message from me for MAINE/NH llmds!
also, please copy your other post over here on your top post by EDITING it to add.
BUT PLEASE BREAK IT ALL up into short paragraphs for us neuro lyme patients who can not read or comprehend as you typed it ok! we have to scroll on by these since our brains can't decipher. please use my guidelines below for doing this ok! big thanks!!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @
please go to my newbie links, copy the entire thing, and then print this off....FINANCIAL BURDENS compiled by melanie reber print off pages 74 - 92; outstanding info there. i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
Betty's POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING. delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.