Would appreciate impressions/opinions about her medical skills in general and her methods for treating Lyme and co-infections specifically. Specifically concerned with long term chronic Babesia.
Is she a member of ILADS? (Last time I checked a couple years ago, she was not.)
Considering her for my elderly mother. Thank you.
[ 06-02-2009, 09:02 AM: Message edited by: northeast ohio ]
Posted by bettyg (Member # 6147) on :
ohio, welcome!
never heard of this person; checked both my lists!
Betty's suggested POSTING GUIDELINES . many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``TWICE`` after each paragraph; we need that space for comprehension.
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. ------------------------------------------------------
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. *******************************************
This explains the medical politics around lyme WHY you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM." ===========
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases.
Posted by northeast ohio (Member # 20555) on :
Thank you, bettyg!
Still hoping to find someone who has seen this doc or knows someone who has.
TIA!
Posted by northeast ohio (Member # 20555) on :
up, please
Posted by northeast ohio (Member # 20555) on :
up again, please
Posted by northeast ohio (Member # 20555) on :
up once more, please
Posted by bettyg (Member # 6147) on :
did you write barbara who i recommended above? if NOT, DO please.
Posted by Meg (Member # 22) on :
...if Dr R.R. is not on our list, She's most likely NOT a lyme literate medical doctor.
Posted by northeast ohio (Member # 20555) on :
Thank you for your reply.
I know she's not an LLMD. But my parents are unable to travel outside of their local area so I am trying to find someone who has seen her who can give me their opinion of her medical competency, her approach to treatment and "bedside manner".
I have spoken with her directly but am trying to get as much information as I can.
Posted by feelfit (Member # 12770) on :
Only LL doc in Fl worth anything is in Tampa
Posted by northeast ohio (Member # 20555) on :
I understand but that is too far for my parents to travel.
![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.