I picked up Lyme in the UK around Feb 2008 and was misdiagnosed for 6 months. Shopping list of symptoms.
Got IGeneX positive test to CDC criteria and have all co-infections too
After this I had 300mg Doxy for 12 weeks, then Amoxi etc but not getting better.
I have Lyme induced heart implication which is a great worry. This is much worse when I lay down so when it is bad I have to sleep in a chair - upright. My lyme is neuro Lyme btw.
I would like to see (as everyone would) an LLMD who can get me better. Any LLMD suggestions would be most welcome. I can book a flight from the UK to the US to any state so I'm not restricted in that respect. Please PM me ASAP.
Many thanks in anticipation.
Regards Peter
Posted by bettyg (Member # 6147) on :
peter, did you cancel the appt. i helped you with?? you called there before i got thru to them?
Posted by PV (Member # 20436) on :
Hi Betty,
I have kept the appointment you helped me with. Very grateful thanks.
As you know it's a three month waiting list!
I google'd the other two doc's and didn't find anything convincing on them.
As I'm travelling so far I want to feel sure I see an LLMD with a good track record.
Unfortunately these tend to have the long waiting times/lists - as you would expect.
One benefit that I have, is that I will be flying in from the UK, so can book a flight to any state.
Having this scope I was just asking for any recommendations.
Thanks for all your assistance
You are a great asset to this site
Take care Peter
Posted by bettyg (Member # 6147) on :
peter, thanks for the update! i understand.
i hope others will chime in on who they would recommend! best wishes my friend! Posted by pdavis (Member # 14509) on :
PV -- I sent you a private message and recommendation.