I need some reassurance here because while I received a PM about him being one of the better lyme docs, etc. He has not addressed my co-infections and only has me on one antibiotic, still.
Should I find someone else that treats a litte more aggressively?
[ 07-14-2009, 11:27 AM: Message edited by: Toppers ]
Posted by mbroderick (Member # 5220) on :
Did you get recommendations on this doc from several people? One person's experience is not enough. I usually suggest contacting local support groups for some feedback.
Did you ask if he treats following ILADS guidelines / Dr. Burrascano's Treatment Guidelines?
I got good info from a PM from bettyG about him but he's just not addressing anything and I'm not sitting on Biaxin for 3 months while all this other stuff runs rampant....blah.
Posted by mbroderick (Member # 5220) on :
I agree with you. Biaxin only just doesn't sound like a good treatment option!
Try to get some feedback on other docs in your area. Unfortunately, I'm in PA - not familiar with them.
Posted by Toppers (Member # 20083) on :
Could you PM me someone near PA that you would recommend please?
Posted by bettyg (Member # 6147) on :
i sent toppers penn llmds
toppers, go to top post, and delete CITY name; not allowed.
click on pencil to delete it ok. Posted by notimeforlyme (Member # 20267) on :
I just saw Dr H yesterday. It sounds as though he is very open to receiving phone calls and making adjustments to medication as needed.
He started me on a low dose antibiotic and will increase based on my feedback/reaction.
Try giving him a call today. Good luck!
Posted by Ocean (Member # 3496) on :
Hey Toppers,
I asked him about co-infection treatment. He treats the Lyme first, and then looks to see what symptoms are left and he then treats based on symptoms or tests.
I went to a famous (expensive, but very good) LLMD in CA and he also treats Lyme first. He said that while my co tests were negative, said I probably had co's. He said to bring the Lyme load down and then the co-infections are more apt to come out.
I don't think it's good to bombard the body with everything at once, too much trouble trying to detox all the dead stuff.
Treatment takes awhile. My brother will be seeing Dr. H again at the beginning of August again (saw him end of April). He's been on Biaxin and has noticed some improvement. I am very interested to see what he puts him on next.
How long have you been on the Biaxin so far?
Take care, Ocean
Posted by notimeforlyme (Member # 20267) on :
I was also prescribed Biaxin - started the med last night and am starting to herx already this morning. I was hoping it wouldn't be too bad as it is a low dose. I feel like a wimp!
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